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Father Donald E. Mowery is the retired leader of Youth Services globally. He has had a radio show, Talk it Out with Father Don, on WHBQ radio in Memphis, Tennessee, for the past 45 years. This month Joyce Graff appeared on his show. Joyce and Father Don have a great conversation about Powerful Patient and its mission, and also about Youth Services and its mission, highlighting many parallels. In both cases, they work to empower people to work through the issues they cannot change and tackle constructively the things they can change.
Learn more about Father Don. A new book, Spiritual Networking, by Darrell B. Uselton and David Yawn, recounts the history of Youth Services in Memphis and worldwide.
Mike and Joyce speak with Dr. Julia Hallisy about The Empowered Patient Coalition: providing healthcare improvement and patient safety tools directly to consumers.
About Dr. Hallisy:
Dr. Julia Hallisy obtained her BS in Biological Science from the University of San Francisco in 1984 and a second Bachelor’s degree from the University of California in Dental Sciences. In 1988, Dr. Hallisy received her Doctorate in Dental Surgery from the University of California at San Francisco School of Dentistry. Since that time, she has been a full-time practicing San Francisco dentist.
Her second child, Katherine Eileen, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with her daughter’s life-threatening diagnosis, the many recurrences of cancer, and the subsequent treatments for the malignant and aggressive tumors marked the beginning an almost 20-year involvement in our healthcare system. The unique combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
Dr. Hallisy began to research the topic of patient safety in 1998. She has lobbied for health care reform in Washington, DC with Consumer’s Union.
Dr. Hallisy is committed to and passionate about the subjects of patient safety, health care reform and medical error reduction. She is the founder and president of The Empowered Patient Coalition.
Dr. Hallisy was born and raised in San Francisco, where she lives with her husband, John Hallisy, and their two sons, Daniel and Kevin. The Hallisy’s ten-year old daughter, Kate, lost her life-long battle with cancer in February 2000.
Kay's back and it's April and we're gettin' April off to a hoppin' start with funny lady, Suzi Berlin live in studio with us! She'll be paneling, telling us about her upcoming gigs and helping us make the show funny for a change! Dereck has the Weird News and Kay has the Hot Topics along with the "Things of the Month". Plus, a special dedication to Kay's Kitty who crossed the Rainbow Bridge rcently, Paddington. You DON'T want to miss this show!!!!!
Input, Solutions, Culture
Pharmaguy interviews Anne C. Beal, MD, MPH, Chief Patient Officer, Sanofi, and Melva T. Covington, MPH, MBA., PhD, Project Leader, Research and Develooment, Sanofi. They talk about their roles in bringing the patient perspective into Sanofi's work to advance Sanofi's ability to deliver health care solutions that matter most to patients and those who care for them.
Questions/Topics of Discussion
How do you define "Patient-Centricity?"
Tell us more about the three pillars of Sanofi's Patient-Centric Strategy. How do you get patients' input? Do you have any patient advocates on your team who are not physicians but who have worked extensively with patients?
Are we talking only about patient-centricity in the context of research & development? What about corporate and marketing communications?
What's the most difficult hurdle for pharma to overcome to be truly patient-centric?
Why did Sanofi create the role of "Chief Patient Officer?" How is it different from "Chief Medical Officer?" What do you do as Sanofi's Chief Patient Officer? Can you relate a case study which demonstrates how you implemented your strategy?
What other pharmaceutical companies have Chief Patient Officers? Do they all have similar roles? Will all pharma companies follow?
Listen today to Master Davids teachings about to Opening a Tao Healing Center in Berlin, Germany
Please visit Master David Lusch's blog at http://www.SoulHealingOCD.com.
The purpose of this channel is to assist humanity in learning how to apply the teachings and wisdom of Dr. and Master Zhi Gang Sha. Many are searching for the deep love, forgiveness, compassion and light with which the Divine Channels offer their teaching and guidance. They will need the practical techniques but will return for their love, forgiveness, compassion, and light.
Master David Lusch is a Disciple and Worldwide Representative of Master Sha, Divine and Tao Channel, Master Soul Healer and Teacher, author, Reader of the Akashic Records, and servant of humanity and all souls. He travels worldwide offering divine and Tao soul secrets, wisdom, knowledge, practices and blessings.
When Master David met Master Sha, he suffered from obsessive-compulsive disorder (OCD) for over half of his life. Through the divine way of healing and using soul healing practices, he has been completely healed of OCD. You can read more about his personal healing journey in his heart-touching book, How I Healed My Obsessive-Compulsive Disorder.
Just as he experienced, Master David empowers people to remove their suffering and overcome their challenges by healing and transforming their lives and soul journeys. He offers divine blessings, Divine Karma Cleansings, Divine Transmissions, life guidance soul readings and teachings to people worldwide.
Master David is one of the top teachers in the Institute of Soul Healing and Enlightenment™. His expertise has assisted in training thousands of students worldwide
Join Margaret Sisson and me as we discuss the two perspectives of what it is like when a daughter/son is placed in a psych hospital from the parent and patient angle.
Stigma is so rampant when it comes to hospitilization and the emotional effects can be lasting and devastating on the individual and the families.
Let's break down some stigma and get to the root of the issues!
Joyce speaks with Ellen Matloff, geneticist, about her newest venture, MyGeneCounsel.
Ellen Matloff, MS, CGC is the President and CEO of My Gene Counsel. Ellen is the founder and former director of the Cancer Genetic Counseling Program at Yale School of Medicine and a lead plaintiff in the 2013 United States Supreme Court gene patent case. Ellen has authored more than 50 scientific publications in the field, is an established educator, lecturer and media spokesperson and has received national awards for her ongoing patient advocacy efforts.
She was the 2013 honoree of ArtBra New Haven for her work with hereditary breast cancer, and particularly for helping to challenge the validity of patenting the genes for breast cancer.
Ellen’s area of special interest is BRCA I and BRCA II mutations, which vastly increase the probability of a carrier developing breast and/or ovarian cancer. For the past 18 years, she has been dedicated to patient and provider issues in cancer genetic counseling, and the impact of genetic patents on patients and clinical practice.
Ellen was one of the lead plaintiffs in Association of Molecular Pathology v. Myriad Genetics, the landmark case before the U.S. Supreme Court, which challenged the validity of patenting naturally-occurring substances from the human body. Myriad Genetics had patented the BRCA I and II genes, and held the monopoly on testing. This effectively froze research, and made necessary testing unaffordable for many patients, leaving them to make huge decisions about their treatment without vital information. Ellen worked tirelessly for the interests of breast cancer patients and their families.
Timothy Ray Brown is “The Berlin patient”, the man who once had HIV. Although American, he was living in Berlin and receiving treatment for HIV when he was diagnosed in 2006 with leukemia. He was treated by Dr Gero Huetter who had a cutting-edge idea of treating his leukemia with a stem cell transplant from a person who was born immune to HIV infection. The rest is medical history. Timothy is recognized by international researchers as the first and only documented case of a person being cured of HIV. Now, almost 20 years after he was diagnosed, the 45-year-old is, essentially, cured. He now lives in San Francisco and since he decided to out himself as the person who had been known only as “The Berlin Patient”, he has become a bit of a celebrity at various AIDS functions. His most important goal is to assist in making his cure provide an impetus for creating a universal cure for HIV which will be accessible and available to everyone regardless of their economic means or background. He believes that this is one of the most important challenges to medical scientists of our time. He is counting on your support in assisting the achievement of this goal.
In the past, in even the best of doctor-patient relationships, it was usually the doctor who made the final decision about treatment. Now that's changing. On this week's program, we explore "participatory medicine" with patient-engagement advocate Dave deBronkhart, Jr., better known to his blog followers as e-Patient Dave. Also on the program, Mayo Clinic ophthalmologist Dr. Raymond Iezzi, Jr., talks about the bionic eye, […]
Laprill O’Brien is a registered medical marijuana patient who has beat cancer twice and suffers from manic bipolar disorder. On the morning of July 7, 2014 her home in Diamond Bar was raided by police because they were growing marijuana. Ms. O’Brien was held in jail for five days and her children were taken by CPS.
Although they have gotten their children back, she and her husband, Rick Gromoll have been charged with illegal cultivation with their next court date set for April 23 in Pomona. As the show’s first guests, Laprill and Rick will reveal the horrors that happened that day, how it has affected their family and how their court case is proceeding.
Wondering whether the VA directive stating veterans who use medicinal marijuana should not be kick out of their pain management programs is being implemented? Then meet Ken Whitemire, a veteran receiving services from the Loma Linda VA Hospital for chronic pain related to service connected injuries to his back and neck. He had been kicked out of his pain management program because of his use of medicinal marijuana.
On Monday, March 30 he went back to his pain management doctor with the new directive in hand and became the first medical marijuana veteran to be reinstated into a pain management program as a result of the new directive. What happened when Ken confronted his VA doctor is remarkable, astounding and ever so invigorating.
TUESDAY, MARCH 31 - 1:00 PM PST
Tonight our incredible special guest is Patricia Ortiz, Vice President of Patient Liaison at Rare Diseases Patients First! a nonprofit organization that focuses on educating patients with rare diseases about the clinical trial and drug development processes.
Patricia Ortiz began her professional career working at the National Metrology Institute in Germany and has expertise in many different engineering disciplines including precision engineering, nuclear physics, and quantum optics. Later she shifted her focus to Biomedical Engineering. Upon completing her Master’s Degree in Biomedical Engineering at the University of Applied Science in Luebeck, Germany she has worked for large medical device and biotech companies as well as small startups, leading cross functional team in medical software and diagnostic instrument development within the US and overseas.
Rare Diseases Patients First! is a nonprofit organization that was founded by Dr. Lorna Speid in 2014 and focused on educating patients with rare diseases about the clinical trial process and drug development.
Visit their Facebook page: https://www.facebook.com/rarediseasesPF
Visit their Twitter page: https://twitter.com/rarediseasesPF
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