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Dave deBronkart has a well-earned reputation as an e-Patient. An internationally recognized speaker, author, and health policy advisor, he has words of strength for patients for sure.
In addition, he works with physicians, hospitals, and pharmaceutical companies to help them Let Patients Help!
When most manufacturers decide to create a new product, they do market research and conduct focus groups to determine in advance what the consumers want.
In medicine, it's mostly about what the doctors want.
But the doctors are not the end-user consumers in medicine, they are talented and experienced personnel, but the end-user consumers are the patients.
Come hear what Dave believes are the many ways that Patients can help improve healthcare.
See also Dave's new book, Let Patients Help! A patient engagement handbook - how doctors, nurses, patients and caregivers can partner for better health care. http://www.epatientdave.com/let-patients-help/
Audio clip credits:
Gimme My DaM Data – Maastricht, 2011
Posted by WellApps, https://www.youtube.com/watch?v=0b4li7N_7Ck
Music Video by the Collaborative Agency Group, 2013
Timothy Ray Brown is “The Berlin patient”, the man who once had HIV. Although American, he was living in Berlin and receiving treatment for HIV when he was diagnosed in 2006 with leukemia. He was treated by Dr Gero Huetter who had a cutting-edge idea of treating his leukemia with a stem cell transplant from a person who was born immune to HIV infection. The rest is medical history. Timothy is recognized by international researchers as the first and only documented case of a person being cured of HIV. Now, almost 20 years after he was diagnosed, the 45-year-old is, essentially, cured. He now lives in San Francisco and since he decided to out himself as the person who had been known only as “The Berlin Patient”, he has become a bit of a celebrity at various AIDS functions. His most important goal is to assist in making his cure provide an impetus for creating a universal cure for HIV which will be accessible and available to everyone regardless of their economic means or background. He believes that this is one of the most important challenges to medical scientists of our time. He is counting on your support in assisting the achievement of this goal.
Join us as we talk with Paul Szablowski, the Senior Vice President of Communications and Image at Texas Health Resources, about “Creating a Fascinating Patient Experience.” Paul contends that treating patients should not be limited to prescribing medication and ordering tests. Instead, hospitals should re-examine the entire patient environment starting from the minute patients walk through the door, including lighting in the building and the type of questions that are asked. All these items are important as healthcare organizations find new and exciting ways to engage patients and shift towards value-based, holistic care.
Medication errors happen at home, in the hospital and in the pharmacy.
We will be interviewing Maria L. Franco PharmD, CGP who will share her expertise on some of the most common errors and how they can be avoided. She will be sharing actual stories of how medication misuse and improper use can change the outcome of patient care.
Learn how medication dependency and abuse may be avoided with a Designated Medication Manager and how errors in the hospitals may be prevented with patient and family participation.
Come and join the Cautious Patient Communities where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Take control and be part of the solution to learn more about being responsible and effective advocates for yourselves and your loved ones.
Monday night, November 11, meet Jeff. Learn about how he spoke up and his actions of being informed and getting involved changed the course of his care and maybe even saved his life!
About CPC Blog Talk Radio: Join us as we chat about how we became Cautious Patients. Cautious Patient Communities is a group where patients and families learn how to be informed and involved in their healthcare. This leads to better healthcare outcomes, as well as a sense of no longer being an outsider in your own care!
Now we can share what has worked during this 30 minute Blog Talk Radio show!
The Powerful Patient has recently been granted full membership in the International Alliance of Patients' Organizations (IAPO), an organization of organizations worldwide,
IAPO is a unique global alliance representing patients of all nationalities across all disease areas and promoting patient-centred healthcare around the world.
IAPO members are patients' organizations working at the international, regional, national and local levels to represent and support patients, their families and carers. A patient is a person with any chronic disease, illness, syndrome, impairment or disability.
Joyce and Mike speak with Rachel Seal-Jones,Senior Policy Officer of IAPO, about the organization's activities. IAPO has recently been granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
IAPO will now actively engage with ECOSOC and its subsidiary bodies, the United Nations Secretariat, programmes, funds and agencies in a number of ways. This includes:
Attendance at meetings and access to the United Nations
Submission of formal statements and oral presentations to the Council and other UN bodies on relevant topics
Taking part in consultations with ECOSOC and other UN bodies
For additional informaion, please see http://www.patientsorganizations.org
Jane Cooper is founder, President and CEO of Patient Care, the nation’s leading advocacy company, based in Milwaukee, WI. The company began operations in August, 2001 and helped create the advocacy industry. Patient Care currently provides services for over 1 million members across the country.
Jane is a pioneer in health care reform. Her company equips consumers with information needed to make informed decisions. Her experience indicates when given cost and quality information consumers make better choices saving themselves and us money.
Tonight is Patient Spotlight Night- to spotlight youth in pain stories of the @powerofpain youth fundraisers -
Tune in to hear about 4 different diseases and how the kids and the families are working to overcome the challenges
Barby Ingle, Chariman of the Power of Pain Foundation will be co-hosting with me tonight.
Mike and Joyce speak with Casey Quinlan of Mighty Casey Media, author and blogger about patients’ rights and the value of patient input in medical research.
Some medical institutions are beginning to “get” that the patients need to be involved from the beginning in all aspects of medical process and procedure. The patients are the “customers” and are the essential “stakeholders” in designing buildings, clinical trials, and indeed the business workflow surrounding all interactions between doctor and patient.
Come hear Casey’s thoughts on how patients can and should be involved.
“While some [doctors'] offices are looking at increasing their front desk staff, we should be looking at what banks have done. Limit services to those focusing on new patients and special needs. The days of having your name called out in a crowded doctor’s waiting room should be over – that is, unless you really like being asked at the front desk what you are there for (while a long line of patients eagerly await your answer). It’s time to reinvent your practice’s workflow, and it begins by being creative and tapping into your patient’s experience.” — Pete Rivera, Hayes Management Consultant, HIMSS Health Information Systems
“I have this dream. It’s about how, when I make an appointment to see my doctor – my primary care physician – the process is easy, honors my time as much as it does my doctor’s, and winds up running smoothly for both parties.” — Casey Quinlan – See more at: http://www.disruptivewomen.net/2010/12/24/all-i-want-for-christmas-is-customer-service-at-my-doctor%E2%80%99s-office/#sthash.SGi2n6pa.dpuf
Dr. Julia Hallisy is a practicing dentist in San Francisco, California. In 1989, Dr. Hallisy’s late daughter, Katherine, was diagnosed at five months of age with bilateral retinoblastoma. Dealing with Kate’s life-threatening diagnosis marked the beginning of a 20-year involvement in our healthcare system. The combination of her scientific training, her work as a healthcare provider, and guiding a child through a chronic illness has afforded her invaluable insight as an advocate for patients.
The many lessons she learned during Kate’s life became the foundation for her book, The Empowered Patient: Hundreds of life-saving facts, action steps and strategies you need to know. Dr. Hallisy works at The Empowered Patient Coalition non-profit organization and has worked with the California Nurses Association, the IOM Initiative on the Future of Nursing and is a member of the leadership council for the California Regional Coalition working to implement the IOM recommendations.
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