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I have a child with a developmental disability.. where will they live without me?
Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany.
When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child.
Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members.
This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council.
We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
Interested in Autism and Developmental Disabilities Advocacy in Washington? So is Autism Empowerment!
Tune in as John interviews Autism Empowerment Executive Director, Karen Krejcha as she talks about her recent weekend in Olympia. As part of a year long Disabilities Leadership Development Program, she traveled to Olympia with other self-advocates, parents and professionals. She had the opportunity to receive training, network with other advocates and no-profits, tour the State Capitol, share lunch with local legislators, learn about the legislative process and practice advocacy skills and testifying before Congress.
We will chat about a variety of topics of interest that came up during the training including Seclusion / Aversion rooms in Washington schools, the No Paid Services Caseload, Respite Care, Companion Homes, Vocational Traning and help for individuals experiencing cultural communication barriers.
Even if you don't live in Washington, you will likely find this show valuable in terms of understanding more about what kind of services our government provides versus what is provided through the private sector.
Is it possible to Unite the Autism Community? Can Autistic and Aspie adults, teens and children respectfully come together with parents, educators, service professionals and nonprofit autism organizations to discuss challenges and work toward the common good?
If so, what would that look like? Who would be seated at the table? Who would facilitate the conversation?
How do we calm the chaos, reduce the infighting and begin to work together for a stronger, more united, autism community that focuses on acceptance, empowerment, optimal outcomes and positive life trajectories? How do we provide individuals and families with support, opportunity and connection?
Join Autism Empowerment Radio as Karen Krejcha discusses these challenges. Diagnosed with Asperger syndrome in her 40s, Karen is mom to two sons (8 and 15) also diagnosed on the autism spectrum. As Executive Director and co-founder of the nonprofit, Autism Empowerment, Karen regularly engages in conversation with autistic teens and adults as well as parents and other family members. She sees and hears the frustration from those on the spectrum who want to be respected and accepted and not seen as a burden upon society. She sees and hears from parents who want to do the best for their children but struggle navigating convoluted and conflicting systems of service that sometimes hurt more than they help.
Is it possible to strengthen the Autism Community? We think so!
Let's talk about it.
in Self Help
Did you know that Whoopi Goldberg had a learning disorder as a child? Were you aware that Harriet Tubman had epilepsy? These are only two of the many examples of Blacks who became successful despite their disabilities. Some people tend to discourage others with disabilities from achieving their dreams because "it's for their own good"; they want to overprotect them or they just don't understand how a person can accomplish anything despite his/her "limitations." Once you hear these different celebrities' stories, you'll never view people with disabilities the same way again. You will be inspired and encouraged to uplift someone else and even accomplish your own goals!
Join us for a conversation with Zarifa Roberson, CEO of i.d.e.a.l. Magazine, the exclusive quarterly magazine for Urban Young People with Disabilities (i.d.e.a.l. is an acronym for Individuals with Disabilities Express About Life). The magazine focuses on disability lifestyles, culture and political issues facing the disability community, and features fashion, beauty, health & fitness, entertainment, sports, and editorial sections. We'll discuss i.d.e.a.l. Magazine's efforts to climb to the forefront of voicing concerns in the disability community, and Roberson's goals to be the next Oprah for the disability community and to make the magazine a global household name.
Roberson is a 35 year old from Philadelphia, PA, born with Arthrogryposis Multiplex Congentia (AMC). She holds a B.S. in Speech Communication with a minor in African American Studies from Millersville University, and M.Ed in Rehabilitation Counseling from Coppin State University.
PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.
Read and subscribe to PA Disability News to stay up to date on news and events of interest to the PA disability community.
Thanks for listening!
Join us for a conversation with Dr. Marlene Chait, Disability Studies Educator / Consultant / Grant Development / Researcher, on topics of particular interest to women with disabilities. We'll discuss women as sexual beings, the overwhelming amount of physical, emotional, mental and covert abuse, isolation and other struggles they face, and the urgent need to meet the inclusion of seniors. We'll also discuss Marlene's work with women who became disabled during military service, and the need for community based supports and further study.
Marlene authored a dissertation entitled "An Exploratory Study About Women With Physical Disabilities: A Survey of Their Views on Personal Care Assistance Services (PAS), Sexuality Education, and Sexual Expression". She holds Doctorate in Education, Disability Studies/Transition Special Ed, from The George Washington University.
PA Independent Living Radio Show is brought to you by The Arc of Luzerne County, Fridays at 12:00 PM EST/EDT. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families. For more news and events of interest to the PA disability community, visit PA Disability News.
Thanks for listening!
Hello and welcome to this week's show at the unusual time and day of Friday. This week, we'll be having Jeanette Purkis on to talk all about her work as an author and writer on the Autistic Spectrum. As well as this, we'll be taking a look at autism in society and looking at things such as mental health, education and the support that's given for those with autism.
We will also be joined by our team member and radio show host Marilyn Ann Francis. She will be joining in on the discussion as she has lots of experience on autism. We will also be hearing some poetry from Marilyn.
You can join us in the chat room to join in on the discussion and you can also call in to speak with us on 1-619-393-2848 or call in via the Skype link. We look forward to hearing from you.
To find out more about Positively Autistic, visit our Facebook page at: http://www.facebook.com/PositivelyAutistic
Welcome to the return of Sarah's Autism Chat! This is our first radio show of 2015 so we would like to wish you a very happy new year.
We will be live at 8pm UK time. We will be talking all about resilience, education, autism, employment, mental health.
We will fulfil a number of different issues across the world in order to give the greater public an understanding of autism and its implications. Furthermore, Jeanette will be talking about her experiences as an autism author and advocate in Australia.
Sarah will be discussing her recent meetings with the Autism Partnership Board and the further work she has been doing in the Grimsby area of England regarding autism.
We will be open to callers and anyone who has question they would like to post.
After a long hiatus to take care of family matters, Dana is back on the radio show. Her special guest is Tammie Polk, a homeschooling consultant with Choice Home Education Consulting. She will talk about how to make the best choices for education as parents of Autistic children. A homeschooling mother herself, she has a daughter who is mildly Autistic.
Dana is the owner of AngelArts, a Creative Arts Agency and Publishing House. Seven years ago, she discovered that her son and husband both have Aspergers. It's opened up a whole new world for her and her family. Yes, there are incredible challenges, but she chooses to see how God has blessed her family through it.
Her son created a painting that became an inspiration for her Autism Awareness product line, Autism: God's Bright Kids. She also is publishing a book called "Angels in the Midst: Rising Above Autism and Aspergers," a collection of stories, poetry, videos, and artwork about how God uses ordinary people in the challenge of living with Autism and how He works in the midst of it. She is looking for submissions, sponsors, and nonprofits to give a portion of the revenue to. The book is due out in April 2015.
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