• 00:15

    Group Homes for Children with Developmental Disabilities

    in School

    I have a child with a developmental disability.. where will they live without me?


     


    Rachael has worked with individuals with developmental disabilities for approximately 7 years. Most recently, she was an Assistant Manager for The Center for Disability Services for a group home with 7 adults. Rachael is currently a full time MSW student at SUNY Albany. 


     


    When a family has a child with a developmental disability, their future is often uncertain. Individuals with developmental disabilities are often somewhat, if not completely, dependent on their caretakers. Group homes are often an option for families to consider as their child continues to grow and parents become older and less able to care for their child. 

  • 00:47

    WA State Developmental Disabilities Resources - Eva Rooks

    in Family

    Where do we go in Washington state to get connected when it comes to helping individuals living with autism? What services are accessible from the state? How do we plug in? How do we navigate the often confusing and complex systems maze?
    Good information leads to better choices and decisions for people on the autism spectrum or with other developmental disabilities and differences, yet survey data shows many families say they do not get enough information to effectively participate in planning services for their family members. 
    This is of concern to Autism Empowerment and other advocacy and support organizations that believe clear, concise information from trusted sources is critical to every family’s ability to access resources and care for individuals on the autism spectrum.
    Listen in today as Autism Empowerment Radio interviews Eva Rooks, Communication and Planning Manager for the Washington State Developmental Disabilities Council. 
    We will talk about current priorities for the DDC and we'll learn how to plug into and navigate the WA state Informing Families, Building Trust website, blog and informational outreach.
    Sponsored by the Washington State Developmental Disabilities Council, in collaboration with the Division of Developmental Disabilities and others, the IFBT goal is to provide information about issues, services and supports that make a difference in the lives of individuals with developmental disabilities and their families.
    Website: https://fortress.wa.gov/com/csddcinformingfamilies//Default.aspx
    Facebook: https://www.facebook.com/InformingFamilies

  • 00:48

    Developmental Disabilities Legislative Advocacy Trip to WA

    in Family

    Interested in Autism and Developmental Disabilities Advocacy in Washington? So is Autism Empowerment!  
    Tune in as John interviews Autism Empowerment Executive Director, Karen Krejcha as she talks about her recent weekend in Olympia. As part of a year long Disabilities Leadership Development Program, she traveled to Olympia with other self-advocates, parents and professionals. She had the opportunity to receive training, network with other advocates and no-profits, tour the State Capitol, share lunch with local legislators, learn about the legislative process and practice advocacy skills and testifying before Congress.
    We will chat about a variety of topics of interest that came up during the training including Seclusion / Aversion rooms in Washington schools, the No Paid Services Caseload, Respite Care, Companion Homes, Vocational Traning and help for individuals experiencing cultural communication barriers. 
    Even if you don't live in Washington, you will likely find this show valuable in terms of understanding more about what kind of services our government provides versus what is provided through the private sector.
    http://www.autismempowerment.org
    http://www.facebook.com/autismempowerment
     

  • 00:31

    Developmental Delays and 5p-

    in Health

    Mike and Joyce speak with Laura Castillo, Executive Director of FivePMinus.org, helping families affected by Cri du Chat (Cat Cry) Syndrome (CdCs).


    Babies born with CdCs are characterized at birth by a high-pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications.  "5p-" is a term used by geneticists to describe a portion of the short arm of chromosome number five that is missing in these individuals.  Some of the facial characteristics include:



    Round "moon shaped" face
    Small upturned nose at birth
    Small or low set chin (micrognathis)
    Low positioned ears
    Downward slanting of the eyes
    Wide spaced eyes
    Extra skin fold at the inner corner of one or both eyes (epicanthal fold)


    These facial features usually elongate as the child enters adulthood.  Children with CdCs are often also diagnosed with autism since many of the developmental issues are similar.


    There is a great deal of good information on this syndrome on their website.  See especially http://www.fivepminus.org/Development


    Laura shares with us the origins of the 5p- Society, the national family support group for individuals with Cri du Chat Syndrome.  They group shares expeerience and provides support to individuals and families affected by CdCs, sharing strategies for managing the syndrome and supporting their children in achieving his or her maximum potential  Children with Cri du Chat Syndrome can lead full and meaningful lives with love and support.

  • 00:55

    Technology and Autism with Christopher J. Smith

    in Family

    We talk with Christopher J. Smith of Southwest Autism Research & Resource Center (SARRC) about emerging technology and research to support individuals with autism.


    Christopher J. Smith, Ph.D., Vice President and Director of Research at SARRC, is an experimental psychologist with expertise in the diagnosis of autism spectrum disorder and measurement of associated traits. Before joining SARRC, Dr. Smith was an assistant professor in the department of psychiatry at the Mount Sinai School of Medicine, and still maintains a faculty position. His background is in phenotyping complex psychiatric disorders for the purposes of genetic studies.


    Under the direction of Dr. Smith, SARRC’s research team focuses on improving the early detection of autism spectrum disorder (ASD) and expediting accurate diagnostic methods; advancing research on effective treatments for autism, both pharmaceutical and behavioral, that lead to an improved quality of life for individuals with the disorder and their families; and educating all kinds of professionals in the community to improve detection, diagnosis and services for individuals with autism.

  • 00:07

    Sean's Autism Q&A

    in Caregiving

    I was born with severe Autism. On my show I welcome anyone who wants to speak their mind regarding Autism. If you have questions regarding your daughter or son who has Autism I have the answers. Or maybe your a BCBA and you want to talk to someone who has inside knowledge of Autism. Whatever The case may be..You can trust me with your very valuable time.


     

  • 00:45

    Traveling With Disabilities

    in Travel

    Tips and Resources for the Disabled Traveler are discussed on this weeks, The Traveling Eye. Join Bonnie DeShong and Ja'Vonne Harley as they discuss the many types of travelers who may need assistance. The Americans with Disabilities act and how all affect travel. What you may or may not know to make your travel more accessible and how to enjoy your trip, no matter what your needs. "Building bridges to create a new era where people with disabilities will take their rightful place in the world community" - Mobility International USA-


    Tune in and have your pen and paper ready! This will be a show full of great information.

  • 01:25

    Rights and Resources for Children Born with Disabilities

    in Parents

    If a child is born with a disability or disorder the challenges can be great. Many parents are not aware of their rights, the law, or the best steps to take to make sure that their children get the best care for optimal development.


    Today’s “Brains in Toyland” segment addresses steps parents should consider and resources they should know about if their child is born with a developmental challenge.


    Our guests are education attorneys Eileen Libutti and Jennifer Frankola of Lewis Johs Avallone Aviles, LLP who are experts in family advocacy.


    We hope this is informative.


    Email us any time with questions and suggestions info@KidsAtoZ.com.


    Follow us on Facebook or Dr.T on Twitter


    Best, The KidsAtoZ Team.


     

  • 01:01

    Dr. Josie Badger on Transition and Empowerment for Youth with Disabilities

    in Culture

    Join us for a conversation with Dr. Josie Badger, on transition to adulthood, youth empowerment, collaboration and leadership for youth with disabilities - and much more, Friday, February 27 at 12 PM EST. 


    Josie received her Doctorate in Healthcare Ethics from Duquesne University in 2014 and is a Certified Rehabilitation Counselor. She works at PEAL as the Youth Director, assisting youth in transition and leadership development.  Additionally, she is Co-Director of the national RSA- Parent Training and Information Center technical assistance center (RAISE), and chair of the #IWantToWork Campaign, to improve employment of youth with disabilities. Josie is contributing author of two youth transition toolkits, has lead over 200 trainings, and developed a 200 page toolkit to support youth leadership.  In 2012, she was crowned Ms. Wheelchair America, and was named one of Pittsburgh's 40 Under 40 for 2014.


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community. 


    Thanks for listening!

  • 01:01

    Madonna Long - Consumer Advocate for People with Disabilities

    in Culture

    Join us for a conversation with Madonna Long, a respected and established personality in the disability community who works with disability organizations, leaders and businesses around the United States. We'll discuss her passion and work in consumer advocacy and emergency preparedness. 


    Madonna consults to Pride Mobility Products, VETaxi  and former VPG Autos as a Consumer Advocate since 2007.  She is a member of NCIL (National Council for Independent Living) and AAPD (American Association of People with Disabilities), works with disabled groups through Madonna Long Consulting LLC in public relations and marketing through Loops Media Group. She was appointed by Governor Tom Corbett to the Pennsylvania Rehabilitation Council, has received various awards from organizations in the disability community, and holds a Bachelor’s of Science Degree in Homeland Security.


    Follow Madonna on Twitter @MadonnaLong.


    PA Independent Living Radio Show is brought to you every Friday at 12:00 pm EDT/EST by The Arc of Luzerne County. Please consider a donation in support of our work to help improve the quality of life for people with Intellectual and Developmental Disabilities and their families.


    Read and subscribe to PA Disability News (it's free!) to stay up to date on news and events of interest to the PA disability community. 


    Thanks for listening!

  • 01:29

    The Autism Experience Hosted by ANUE

    in Education

    The Autism Experience


    Hosted By ANUE


    Welcome to “The Autism Experience” Hosted by Autism Network of Unique Eccentrics.  This show will focus on living with Autism as well the host has a companion brain injury.  ANUE is for the people by the people a very similar philosophy as TBISN and Radio Ability and Brain Injury Radio.  Their focus will be sharing their journeys as a person with significant challenges.  Join The Autism Experience in their premier show.  Use your phone or computer join in Autism Talk Radio

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