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Is it possible to Unite the Autism Community? Can Autistic and Aspie adults, teens and children respectfully come together with parents, educators, service professionals and nonprofit autism organizations to discuss challenges and work toward the common good?
If so, what would that look like? Who would be seated at the table? Who would facilitate the conversation?
How do we calm the chaos, reduce the infighting and begin to work together for a stronger, more united, autism community that focuses on acceptance, empowerment, optimal outcomes and positive life trajectories? How do we provide individuals and families with support, opportunity and connection?
Join Autism Empowerment Radio as Karen Krejcha discusses these challenges. Diagnosed with Asperger syndrome in her 40s, Karen is mom to two sons (8 and 15) also diagnosed on the autism spectrum. As Executive Director and co-founder of the nonprofit, Autism Empowerment, Karen regularly engages in conversation with autistic teens and adults as well as parents and other family members. She sees and hears the frustration from those on the spectrum who want to be respected and accepted and not seen as a burden upon society. She sees and hears from parents who want to do the best for their children but struggle navigating convoluted and conflicting systems of service that sometimes hurt more than they help.
Is it possible to strengthen the Autism Community? We think so!
Let's talk about it.
Autism is a major issue which is developing and increasing in the USParents may feel that their is no hope or they cannot understand their child in many ways Having had experienced this development ourselves with our youngest child, we had to work hard for results and we will share some tips and tools in whcih you can utilize for Autism in oyur homeAutism spectrum disorder (ASD) is a range of complex neurodevelopment disorders, characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior. Autistic disorder, sometimes called autism or classical ASD, is the most severe form of ASD, while other conditions along the spectrum include a milder form known as Asperger syndrome, and childhood disintegrative disorder and pervasive developmental disorder not otherwise specified (usually referred to as PDD-NOS). Although ASD varies significantly in character and severity, it occurs in all ethnic and socioeconomic groups and affects every age group. Experts estimate that 1 out of 88 children age 8 will have an ASD (Centers for Disease Control and Prevention: Morbidity and Mortality Weekly Report, March 30, 2012). Males are four times more likely to have an ASD than female
Healing Autism Parents
With all the education, progress, and advancements in the world today, we sometimes forget about problems in front of our faces. We have seen increased divisions, whether it is based on gender, race, or ability, and these divisions create depressing barricades to healthy progress. In this episode we address some of the issues within the autism parents' community, how they prevent progress and how it affects advancement.
Autistic lives matter!
Heads up: This episode has a PG--13 rating.
This week on Autism Spectrum Radio we discuss a topic that is extremely important to many parents of young kids with autism, social skills and ability. Most parents are familiar with the social challenges faced by our kids on the spectrum but not everyone knows helpful strategies that will support better social function. This week, host Rob Haupt is pleased to welcome Dr. Ann Densmore, Ed.D. CCC SLP/A, certified speech pathologist and audiologist and author of Helping Children with Autism Become More Social: 76 Ways to Use Narrative Play and author of Your Successful Preschooler: Ten Skills Children Need to Become Confident and Socially Engaged.
Dr. Ann Densmore, Ed.D. CCC SLP/A, certified speech pathologist and audiologist and author of Helping Children with Autism Become More Social: 76 Ways to Use Narrative Play and author of Your Successful Preschooler: Ten Skills Children Need to Become Confident and Socially Engaged (Harvard Medical School and Jossey-Bass, 2011). Director of Child Talk in Lexington, MA. Ann Densmore has been a speech and language consultant at public and private schools or more than 30 years. In addition to running a private practice in Lexington, Massachusetts she also consults internationally and has taught seminars for professionals and students at Harvard Medical School. Ann holds an Ed.M. in Human Development and Psychology from Harvard Graduate School of Education and an Ed.D. in Education with a specialization in child discourse from Clark University. She is board-certified in speech and language pathology and audiology. Ann swims Walden Pond every morning (when it’s not iced over) and enjoys long bike rides with her friends. She also loves photography, swimming with Cambridge New England Masters at Harvard University, and taking walks with her Portuguese Water Dog, Map. http://www.child-talk.com/ Twitter: @AnnDensmore
Tonight Jesse interviews Maria Rickert Hong board member for the non-profit organization Epidemic Answers which focuses on helping parents recover their children from chronic illnesses like Autism, ADHD, SPD, allergies, asthma, acid reflux, chronic ear infections, OCD, Lupus, Type 2 Diabetes, Autoimmune Disorders. Maria is also the Media Director for Documenting Hope and has authored the book "Almost Autism" which focuses on recovering from Autism. We will look at her work with Autism, and her organization Documenting Hope. You can reach Maria through her website at www.mariarickerthong.com
Clare Hedin: www.clarehedin.com
All parents face daily obstacles, but parents of children with autism experience increased challenges that can result in overwhelming anxiety, depression, self-doubt and sadness. Ultimately, these parents are husbands, wives, sisters, brothers, family and friends who simply wish to experience more fulfilling and satisfying lives with their children.
Dr. Darren Sush is a clinical psychologist and board certified behavior analyst, specializing in therapy for parents of children with autism. Throughout his career, Dr. Sush has recognized that parents of children with autism can significantly benefit from the guidance, comfort and empathy of therapeutic services that support their unique experiences and struggles.
Over the past decade, Dr. Sush has had the privilege of working within agencies that provide intervention and support for children diagnosed with autism. Through his work developing treatment programs, meeting with families and helping children, he has gained exceptional knowledge and understanding of the unique experiences of parents of children with autism.
He offers direct knowledge and guidance to the various questions that arise regarding children with autism’s behavior, skill building, treatment, funding and school placement, and helps families live their best lives possible.
On today's episode, Dana's husband is her special guest! He is going to share with us what it's like to be an adult with Aspergers (self-diagnosis), the challenges he has, and the blessings that came with learning about the condition.
Dana is the owner of AngelArts, a Creative Arts Agency and Publishing House. Seven years ago, she discovered that her son and husband both have Aspergers. It's opened up a whole new world for her and her family. Yes, there are incredible challenges, but she chooses to see how God has blessed her family through it.
Her son created a painting that became an inspiration for her Autism Awareness product line, Autism: God's Bright Kids. She also is publishing a book called "Angels in the Midst: Rising Above Autism and Aspergers," a collection of stories, poetry, videos, and artwork about how God uses ordinary people in the challenge of living with Autism and how He works in the midst of it. She is looking for submissions, sponsors, and nonprofits to give a portion of the revenue to. The book is due out in April 2015.
Welcome to this week's show, on this week's show we have Anna Kennedy joining us, to give us a feedback on the Wear it for Autism Event.
As well as this, Sarah will also will be updating us on the Autism Partnership Board meeting, and what was discussed and what is being implemented in our area.
Don't forget that you can join us in the chat room and you can also call in on 1-619-393-2848, or you can call in via the Sype link to join in on the discussion.
To find out more about Positively Autistic, visit our Facebook page via the link: http://www.facebook.com/PositivelyAutistic
in Self Help
Please join us for the third parent installment of The Hidden Side of Autism.
We will meet Brendan's mom, Garlyn, who will share her experiences and challenges of being a mom of a teenage autisic son. Brendan is a teenager with violent tendencies. Garlyn has suffered numerous concussions in caring for her son. Garlyn is concerned about the future of her son and how, where, etc., he will live. They will be losing some of their aides as they return to school, etc., and is concerned about who will be helping them in the near future. Presently Brendan can have up to 3 aides at one time due to his violent outbursts.
We conttnue our special series on the Brain and our re-release of the Dana Sourcebook of Brain Science.
I'm Dave Balog, CIO of A Thousand Moms, Building Community Support for LGBT/Q Youth in Foster/Adoptive Care.
Dr. Ray, Fred Elia and wlll resume our regular shows shortly.
Please lsten to the words of world expert neuroscient Barry Gordon, who speak on the important topic of autism. Dr. Gordon is a contrbutor to the Sourcebook of Brain Scence.
Two points, whch we'll repeat,
1)We recommend the Trevor Project, the safe space for LGBT/Q Youth Feeling troubling thoughs, sucicdal thoughts. Please call the Trevor Projecdt at 1866 4 U Trevor. Repeat.
2) Order your copy of the Sourcebook of Brain Scence, an incredbly valuable resource for everyone: parents, teachers, students, all professionals, all concerned communty members. Order with a donaton of just $10 to A Thousand Moms. Go to www.athousandmoms.org, that's all spelled out, www.athousandmoms.org
Today on the show we will be talking to Gordon Brennan, who is the father of Colin, 12, and on the Autism Spectrum. We will be finding out all about what Colin has been up to and Gordon's work towards becoming the Mayor of Oakville, Ontario, Canada. We would like to hear what Gordon is doing in the community and local area in order to help improve the environment in which people live in around their town. He has already been on the show a few times to talk about some of the things he would like to tackle as the Mayor of Oakville.