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Happy Tuesday everyone! Tonight we are going to get an update on the HSG Clinical Trial for Huntington's disease called First-HD and ARC-HD. Our incredible special guests are:
Samuel Frank, MD – First-HD and ARC-HD PI
Claudia Testa, MD, PhD – First-HD and ARC-HD co-PI
David Stamler, MD – CMO Auspex Pharmaceuticals
Sarah Janicki, MD, MPH – Site Investigator, Columbia for First-HD
We will be discussing the changes to the First-HD protocol with more sites added to help increase participation. We will also be talking with a site investigator, coordinator, and caregiver to get their perspective on how to make clinical trials a more positive experience for everyone.
Silverado Care Facility is a virtual prison of torment for the elderly where they are chemically restrained and kept there against their will for money--$8000 per month, not to mention the cost they get for hospice. Get them out of there! DADS is investigating the place for neglect. I heard of another woman tonight, Ms. Ruby Peterson, that has been locked in this Hell hole by her own daughter and son. Despicable! She is crying for help and we are about to mobilize and give it to her!! Join me in a protest! Spread the news!
Tonight we will talk about preimplantation genetic diagnosis or (PGD) for Huntington’s disease with Dr. Goodman. Read her article on www.HDDrugworks.org titled: PGD for the Prevention of HD. http://hddrugworks.org/index.php?option=com_content&task=view&id=336&Itemid=30
“For more than a decade, couples at risk for Huntington's disease have had the option to conceive an unaffected child by utilizing the reproductive process of preimplantation genetic diagnosis (PGD). If PGD became common practice in HD, it could eliminate the majority of disease for the next generation. So if PGD has the potential to mostly "wipe out" HD for the next generation, why is it so rarely utilized?”
We will discuss the pros and cons of this novel approach to eliminating HD for every in the generations to come. Tune in to a very interesting and informative program with Dr. LaVonne Goodman.
TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a difference in movement disorders. Dr. Testa moved to VCU in 2011, where she is excited to lead a new Huntington disease program.
We will be discuss her career of care and research. Read more...
After completing her MD and PhD degrees, Dr. Testa returned to Boston for internship at Beth Israel Hospital, then neurology residency in the Partners program at Massachusetts General Hospital and Brigham and Women's Hospital, where she was a chief resident her final year. She moved to Emory University for a movement disorders fellowship and basic research with Dr. Timothy Greenamyre.
The HDSA Center of Excellence for Huntington Disease at Emory University was an important part of her growth as a clinician and scientist. Over eleven years at Emory she transitioned from fellow to faculty to medical director of the HDSA Center of Excellence, with involvement in several HSG studies. More recently, to enhance her skills in human disease based research she completed a Masters in Clinical and Translational Research (2012) while a faculty member at Emory University. Between Emory and VCU, she has over 13 years’ experience as an HD clinical study investigator, working with symptomatic, pre symptomatic, and HD at risk research participants. Her current research interests are in genetic causes and risks for essential tremor, Huntington disease pre-motor physiology changes, and Huntington disease observational and treatment trials.
The radio/TV simulcast all about TV, presented live on BlogTalk Radio and Brooklyn Independent Media HD. Our guess: syndicated radio personality Russ Parr, director of Comeback Dad, UP's latest original movie (debuts July 12), and Comeback writer Kimberly Walker..
Dr. Karlene Richardson speaks with none other than New Kidz HD. Get to know the man behind the gift and the lyrics. Hear his thoughts on what inspired In My Eyes. An intimate conversation that draws you into the world of a talented Jamaican artiste, leaving you anticipating exactly what is to next to come!
The radio/TV simulcast all about TV, presented live on BlogTalk Radio and Brooklyn Independent Media HD. Our guests: Lydia Tenaglia and Chris Collins (executive producers) and Shawn Cuddy (producer) of The Hunt With John Walsh, launching Sunday night on CNN, and Anthem Media Group chief executive officer Leonard Asper, which company presents new channels Fight Network and FTNSY.
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