When Bringing Awareness to A Syndrome (22q11.2 Deletion) Becomes A Life Purpose

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How far would you go to create an awareness of a syndrome your child has? Would your life work involve developing research and awareness programs about it? It did for Mindy Taylor Dodge.

Mindy's 16-year-old daughter Lauren has 22q11.2 Deletion Syndrome. Because of that, Mindy has made awareness of the syndrome her life purpose. Mindy founded 22q Colorado, a statewide network of family support, advocacy and outreach for those impacted by 22q. She regularly attends and presents at 22q conferences and workshops and was influential in Colorado state legislative action for the adoption of an official week making Colorado the third state to recognize the week of Aug. 22 as “22q Awareness Week.” She also worked with research/medical specialists to implement, develop and expand the 22q program at Children’s Hospital Colorado, 

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