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Powerful Patient

http://www.powerfulpatient.org


Country: United States

Language: English

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Powerful Patient  

Do you feel helpless in the face of "the system?" This show is to help you learn how to take control and steer your way to health. Hear how others have met these challenges and overcome them. Learn how you can do so too. This program is a forum to share your experiences, ask your questions, and learn how to create and manage your health care team. Make the healthcare system work for you!

Show Notes

Podcast subscription (RSS) for the Powerful Patient can be found at http://powerfulpatient.org, along with all archived shows since September 2007.

  • On Demand Episodes

    Original Air Date:

    Preventing and Managing Diabetes

    Joyce talks with Tina Gruner, Registered Dietitian (RD) and Certified Diabetes Education (CDE). An increasing number of people are confronted with diabetes and are struggling to keep it under control. Ms. Gruner is part of a community medical group helping people manage all the aspects of diabetes such as cardiology, orthopedics, and more.

    No Comments

  • Original Air Date:

    International VHL Day! and the Kids' Handbook

    Dr. Mary Zennett was detained (she's a full-time doctor). We have re-booked with her for May 14. Joyce spoke with Mary Lou Linn about plans for International VHL Day, and the benefits of raising consciousness among doctors and the general public about your disease. We introduce our new book, VHL HANDBOOK KIDS' EDITION which will be available from Amazon in May, and is already available at http://vhl.org

    No Comments

  • Original Air Date:

    Tay Sachs and Allied Diseases - Choosing a treatment path

    Kim Kubilus from National Tay Sachs & Allied Diseases (NTSAD) will speak with Joyce Graff about, "Finding Your Philosophy of Care." Also hear the personal stories of finding a care path from 5 mothers of Tay-Sachs children. Topics addressed will include: defining your care goals & values; developing a working relationship with the pediatrician to create a care plan that fits your goals & values;role of pediatric hospice and end-of-life planning. Visit www.nstad.org for more information.

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  • Original Air Date:

    Yvette Colón - Living with Pain

    Yvette Colón, MSW, ACSW, BCD, Head of the Consumer Pain Information Center of the American Pain Foundation, speaks with Joyce about strategies for managing and living with pain.

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  • Original Air Date:

    It Runs in the Family - BHD

    Cathy Sherman of the Birt-Hogg-Dubé Syndrome Family Alliance talks with Joyce about how her family learned why so many members were getting kidney cancer, and how they formed a group to support one another and find answers.

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