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Filmmaker talks about life with a rare disease

  • Broadcast in Health
Powerful Patient

Powerful Patient


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Tarek McCarthy, an award-winning filmmaker, will be reaching out to share his insights into living with a rare disease.

Diagnosed with VHL in 2004, he underwent multiple surgeries to remove tumors from his brain in addition to the removal of his left adrenal gland.  After being “stable” for several years, his recent MRIs have revealed the growth of new tumors.

Faced with this latest challenge, he will be sharing the elements in his life that have awarded him the inspiration to help him overcome the hurdles that VHL and other rare diseases present to us all.