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PIDD radio

PIDD radio

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PIDD radio is a show for the primary immune deficiency community and to raise awareness of the 150+ types of primary immune deficiency diseases, discuss our treatments and our concerns. There are approximately 250,000 people diagnosed with primary immunodeficiency diseases in the United States. Now we have our own show! Patients & parents worldwide are welcome to call in. If you have a topic or original music you would like on PIDD radio message me. I'd love to hear from you! **PIDD radio is a source of support and discussion about primary immunodeficiency diseases. It is not a substitute for professional services including the practice of medicine or other professional advice. All callers and listeners should consult their medical or other competent professionals for health care, social services, or any other guidance. If any part of our discussions is inconsistent with the recipient's medical caregivers' advice, comply with the medical caregiver's advice.

On-Demand Episodes

Happy 4th of July! Are you living with PIDD and/or proud to be an American? What does independence mean to you? I'd love to hear from you. My listener dial-in number is (347) 934-0024 Host ID: 81784. ** Special musical guest the... more
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On July 25th we will have the full Interview with Katherine Eban author of "Dangerous Doses: A True Story of Cops, Counterfeiters, and the Contamination of America's Drug Supply". Living with PIDD? I'd love to hear from you. My... more
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Have you tried Hizentra? I'd love to hear from you. My listener dial-in number is (347) 934-0024 Host ID: 81784
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Interview with Katherine Eban Moved to 6/27/10. Living with PIDD? I'd love to hear from you. My listener dial-in number is (347) 934-0024 Host ID: 81784
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Interview with Kris McFalls Patient Advocate for IG Living Magazine (Ask Kris). IG Living is the only magazine dedicated to bringing comprehensive health care information, immune globulin information, community and reimbursement news,... more
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Interview with ANNY JACOBY-FEMALE PERSONAL SAFETY EXPERT,ADVOCATE, CONSULTANT, SPEAKER, & PDR CERTIFIED INSTRUCTOR. Questions or comments? I'd love to hear from you. My listener... more
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Interview with Michelle Kennan Fox on Fundraising for IDF. Blue Jeans for Healthy Genes, Think Zebra, Facebook, and Ebay Giving works. If you've have had a successful fundraising event call in and share your tips & ideas!... more
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Interview with Carol Miletti PIDD Specialist- consultant for BioRx on Caregiving and the stresses it puts on relationships. Living with PIDD? I'd love to hear from you. My listener dial-in number is (347) 934-0024 Host ID: 81784
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Interview with patient advocate Michelle Vogel on "Dying For Help" a feature length documentary about the battle facing patients with chronic and rare diseases including: autoimmune, cancer, neuropathy, and primary immunodeficiency, who... more
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IDF Advocacy Day 2010. Living with PIDD? I'd love to hear from you. My listener dial-in number is (347) 934-0024 Host ID: 81784
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