Beyond Words Live

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Survivors have a story to tell. What happend in their lives, how they were able to change the outcome of their lives, and what resources may or may not have helped at the time. They may also share tidbits of what might have empowered them more so, had it existed at the time as well. This is their time to tell their story and share it with others, and perhaps serve as an inspiration to others who may be going through other similar situations. #Project1000000Voices is my efforts to provide a platform for as many voices as possible - especially those who are survivors!

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Leigh comes forth today talking about what brought her into the passion for the activism for lymphedema rights, what she has done with that time frame, and what her hopes are for the future. Leigh was diagnosed at 21 years old with lymphedema/lipedema, PCOS, fibromaylgia, Chronic fatigue syndrome high blood pressure, hypothyroidsm all on the same day. She had gained 230 pounds in one year. After reaching 500 pounds she had gastric bypass surgery, successfully losing 340 pounds in one year. After consulting with Dr Herbst in June 2014 for a "formal" diagnosis of stage 3 lipoedema she has undergone 3 surgeries for lipedema, all reimbursed by BCBS PPO. Additionally she has authorization for 6 total surgeries and 1 tummy apron removal. She is a disabled stay at home mother of 3, hoping to help others in the same situation with a non profit organization and insurance questions/answers. To learn more about the activism and lymphedema issues: http://facebook.com/lymphedemainthenews Lymphedema Treatment Act http://lymphedematreatmentact.org http://facebook.com/beyondwordslive http://blogtalkradio.com/oralhistory and remember to keep #SharingYourVoice
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The system hiccupped a bit and we didn't get to talk for the full time; however, we are back on this day with the rest of the story. First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in... more

Her Story: "I started dating a guy in Dec 2012. He told me how his mother past away and his father was a drunk. How his ex was mean to him and everybody gave up on him. Me being a mother felt the need to protect him and show him I... more

First time I talked to Sherly, she told me that she had once been a teacher but hasn't been able to work FT in decades. She has had Lymphedema since in the early 90s. She has difficulty fulfilling her life, difficulty in transportation. She... more

This guest has been with us before, but today, she would like to talk about: "my Domestic Violence Survival story. This time I would like to tell the story, but include my fundraiser" as well. There are many legs of the journey we go as a... more

Amberlee is a single mother with 3 children under the age of 3, the oldest being diagnosed with Autism. Having been in an abusive relations for 5 years with her husband, he almost took their lives by strangling her and leaving them in a... more

Cari started her domestic violence journey at the age of 17, when she started dating an older man, had a child out of wedlock and later married him. The abuse left her for dead in a pile of ants. When she was found, she had 4 days of... more

In September 2014, a group of lymphedema advocates converged upon the Capitol Hill to talk to the US House of Represenatives and Senators about the Lymphedema Treatment Act, as well as had a Congressional Hearing to... more

Sharing Her Story, Cat states: "I grew up in a violent household. One image that has stuck with me was when he hit her over the head with a bottle. My mom never really speaks about what happened and she never left her situation. As... more

Amberlee is a single mother with 3 children under the age of 3, the oldest being diagnosed with Autism. Having been in an abusive relations for 5 years with her husband, he almost took their lives by strangling her and leaving them in a... more

This is a male survivor of abuse (disabled, autistic himself, a stroke survivor, on oxygen) with an austic child (who is also diagnosed with dysgraphia, gastrointestinal issues, and a mood disorder). The abuse stems from partner... more
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