Living with Lupus

Physicians4Patients

10/19/2009 3:20 PM UTC

Hi, I saw your show here and wanted to pass along some info about a new Lupus resource that is available. It is through a website www.lupus.physiciansforpatients.com It is a community of lupus folks that interact online to give one another support. There is a dedicated physician on the site to answer questions for the patients. We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to p

jsforeman

4/27/2009 6:38 AM UTC

I was dx's with lupus and two other autoimmune diseases. Everyday I am in constant pain and no one understands. I can not take plaquenil or steroids because I am allergic and almost died in July and December. Thank u for doing this show. I feel like sticking two forks in my eyes almost everyday. I see no light at the end of a very long tunnel.

Fernando Poniente

4/26/2009 9:44 PM UTC

geat show . Interesting video about Lupus here http://snurl.com/youtubelupus

Kiri Love

4/26/2009 1:10 AM UTC

Thanks for the website wwww.couldihavelupus.com! A family member has it, and it helps me understand the disease.

Robyn HJ

4/25/2009 9:30 PM UTC

I just stumbled onto this show and I'm truly grateful that I did. I've struggled with the symptoms of lupus since I was a small child and had no idea why I had all of these medical issues. It wasn't until recently that a doctor looked at me and my face rash and said I should be tested to see if I had lupus. I'm am glad to finally have a name for this, but I'm also finding it hard to deal with it emotionally. But I'm determined to educate myself as much as possible and to inform and help others w