Castleman's Disease Discussion  

Jim Johnston is the International Castleman's Disease Organization Executive Director. The International Castleman's Disease Organization (ICDO) is a patient advocacy forum designed for individuals who have been diagnosed with this rare disorder. Castleman's Disease (CD) is initially characterized by a benign single or multiple growths within the lymphatic tissue. It is normally found by scans in the neck, chest, abdomen or pelvis. This support group is intended to provide an interactive discussion for patients, families, and caregivers of Castleman's Disease. Information provided is for general education purposes only and should not be construed as medical advice nor is is this information intended to replace the advice of your physician. This forum will also serve as a platform to present and discuss pending, current, and proposed clinical trials for Castleman's.