Help4HD

Help 4 HD - The HD View!

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Thank you for tuning in! This is Melissa Biliardi, your host on "Help4HD–The HD View". I am a mom, caregiver and advocate for my son who has Huntington's disease (HD). As the founder of Help4HD International Inc, I have made it my mission to help him and others who are affected by JHD (juvenile Huntington’s disease) and HD by promoting awareness and education to everyone who will listen. Help 4 HD Radio broadcasts live on every Tuesday providing vital information and inspiration to our Huntington's community. This station is a forum for people to discuss all of the issues surrounding our daily JHD/HD lives. As the premier radio program for Huntington's disease, we have been blessed to interview many of our JHD/HD researchers, medical professionals, and pharmaceutical organizations since 2010. Don’t forget to share this channel with your colleagues, family and friends. Talk to you soon!

Upcoming Broadcasts

Tonight we welcome back to the show, Dr. Lorna Speid who works in the pharmaceutical industry as a regulatory affairs and drug development consultant. We will be talking about the role of the PI (Principal Investigator) in clinical trials. After working in the pharmaceutical industry for many years, Dr. Speid saw a need to provide information to patients about clinical trials that would allow them to be empowered enough to ask the right questions before and after entering clinical trials. She wrote the book Clinical Trials: What Patients and Healthy Volunteers Need to Know, to accomplish this. It was published by Oxford University Press in 2010. Oxford University, the publisher of the book has agreed to provide Help 4 HD with a donation every time anyone using the Code HELP4HD154 in purchasing a copy of the book. The link for purchasing the book is http://global.oup.com/academic/promo/32990/?cc=gb&lang=en PROMO CODE: 32990. This is a book that will provide information on the development of new treatments. Education about this process is critical for anyone that is interacting with the process, whether as care giver or as patient. She is the founder of a non-profit called Rare Diseases Patients First! This organization is planning to provide education to patients with rare diseases about the clinical trial process. This education will be provided free of charge. We will provide more information about these educational internet-based meetings, as soon as they are ready to be rolled out later this year. Dr. Speid advises companies on the development of new treatments for rare diseases.
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On-Demand Episodes

Monday, December 26, 2011 - Back by popular demand, Dr. John La Puma a board-certified specialist in internal medicine and professionally trained chef will be talking about ways to help our H'Dear caregivers and community look,... more

Monday, December 19, 2011 - Our incredible special guest is Dr. Christopher Ross, PI for the HSG sponsored PREQUEL Coenzyme Q10 study. Dr. Ross is Professor of Psychiatry, Neurology and Neurosciences at Johns Hopkins. In... more

December 12, 2011 - The HD View with Ana De Lara. We are so pleased to have an amazing JHD/HD supporter within our community! Since 2007, Ana has written, directed, and produced a number of award winning films that have... more

Monday, November 28, 2011– Our incredible special guest tonight is Katie Jackson, author of Ferris Wheel and advocate extraordinaire for Huntington's disease. Katie is an inspiring author in Sacramento, California and she began... more

November 21, 2011 - Happy Anniversary Help 4 HD on Blog Talk Radio! Tonight we will be honoring Melissa Biliardi for her outstanding dedication and advocacy for the JHD/HD community! Melissa is a pioneer! A year ago, she made the... more

PRE-RECORDED: Our incredible special guest today is Stacy Brookhyser, mother of twins free of HD. She is a super duper proactive HD warrior who is spreading the word about a new procedure to stop HD in its tracks. The... more

Monday, October 31, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time – Tonight we will be highlighting an incredible book by author John Lerma, MD titled ?Into The Light?. Maybe you've heard about this poignant book. It's... more

Monday, October 24, 2011 - Our incredible special guest is Dr. LaVonne Goodman from HD Drug Works. Though the HDSA has provided the "A Physicians Guide to the Management of Huntington's Disease" for more than a... more

Monday, October 17, 2011 – Our incredible special guest is Frances Saldaña Advocacy Chairman for the HDSA OC Chapter; Patient Advocacy Committee Member with the Sue and Bill Gross Stem Cell Research Center at... more

Tuesday, October 11, 2011 at 6:30 pm ET/11:30 pm UK time - Our incredible special guest tonight is Matt Ellison, founder of HDYO (Huntington's Disease Youth Organization). Launching in January 2012, HDYO is an organization that... more

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