Help4HD

Help 4 HD - The HD View!

×  

Follow This Show

Stay in the know about new episodes and updates.
Thank you for tuning in! This is Melissa Biliardi, your host on "Help4HD–The HD View". I am a mom, caregiver and advocate for my son who has Huntington's disease (HD). As the founder of Help4HD International Inc, I have made it my mission to help him and others who are affected by JHD (juvenile Huntington’s disease) and HD by promoting awareness and education to everyone who will listen. Help 4 HD Radio broadcasts live on every Tuesday providing vital information and inspiration to our Huntington's community. This station is a forum for people to discuss all of the issues surrounding our daily JHD/HD lives. As the premier radio program for Huntington's disease, we have been blessed to interview many of our JHD/HD researchers, medical professionals, and pharmaceutical organizations since 2010. Don’t forget to share this channel with your colleagues, family and friends. Talk to you soon!

Upcoming Broadcasts

We are very pleased to have Dr. Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She has a practice in the development of new treatments for rare diseases. After working for Sanofi Winthrop in the United Kingdom, Ciba Geigy at headquarters in Switzerland, and Novartis in Switzerland, she moved to the United States. She worked for three small companies in the United States, and now runs her own consulting practice. Dr. Speid sat on an important NIH Committee for the development of new treatments for rare diseases. She is the founder of a non-profit called Rare Diseases Patients First! This organization is planning to provide education to patients around the world that have a rare disease, about the clinical trial process. This will be done free of charge. We will provide more information about these educational internet-based meetings, as soon as they are ready to be rolled out later this year. Dr. Speid advises on the development of new treatments for rare diseases. Dr. Speid saw a need to provide information to patients about clinical trials that would allow them to be empowered enough to ask the right questions before entering clinical trials, and while in clinical trials. She wrote the book Clinical Trials: What Patients and Healthy Volunteers Need to Know, to accomplish this. It was published by Oxford University Press in 2010.
Reminder Edit Reminder

On-Demand Episodes

Monday, October 31, 2011 at 3:30 pm PT/6:30 pm ET/11:30 pm UK time – Tonight we will be highlighting an incredible book by author John Lerma, MD titled ?Into The Light?. Maybe you've heard about this poignant book. It's... more

Monday, October 24, 2011 - Our incredible special guest is Dr. LaVonne Goodman from HD Drug Works. Though the HDSA has provided the "A Physicians Guide to the Management of Huntington's Disease" for more than a... more

Monday, October 17, 2011 – Our incredible special guest is Frances Saldaña Advocacy Chairman for the HDSA OC Chapter; Patient Advocacy Committee Member with the Sue and Bill Gross Stem Cell Research Center at... more

Tuesday, October 11, 2011 at 6:30 pm ET/11:30 pm UK time - Our incredible special guest tonight is Matt Ellison, founder of HDYO (Huntington's Disease Youth Organization). Launching in January 2012, HDYO is an organization that... more

Monday, October 10, 2011 - Our incredible special guests tonight are Jane Paulsen and Stacie Vik from the University of Iowa. UI is currently recruiting individuals who have shown features of JHD before the age of 20 to be a part of... more

Tuesday, October 4, 2011 – Tonight is the special premier of The HD View a new HELP 4 HD pilot program where we will be discussing current topics and concerns of the JHD and HD community. The goal is to get you... more

Tuesday, September 27, 2011 - Our incredible special guest is Joe Giuliano, Director of Clinical Operations at CHDI Foundation, Inc. He received his degrees in Chemistry and Nursing at the Catholic University of America... more

RESCHEDULED FOR Tuesday, October 11, 2011 at 6:30 pm ET/11:30 pm UK time – Our incredible special guest tonight is Matt Ellison, founder of HDYO (Huntington's Disease Youth Organization). Launching in January 2012,... more

Tuesday, September 12, 2011 – Our incredible special guest tonight is Lauren Holder, woman on a mission to bring JHD/HD awareness and advocacy to the World. She is Chapter President of the HDSA North Carolina Chapter in... more

Tuesday, September 6, 2011 - Our incredible special guests tonight are Chris and Lorraine Stiehl who are the Patient Advocate Coordinators for CIRM - the California Institute for Regenerative Medicine - the state stem cell agency. This... more

Comments

 comments