PRE-RECORDED - April 2011
Our incredible special guest today is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington’s Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the world on Facebook Vimeo and Youtube.
James is so passionate and inventive about communicating with our H’Dears that he created James Talk Video, a weekly video blog and James Talk Info Bits which is all about what’s happening NOW in the HD world of advocacy. If you have ever heard the term, "I have Huntington's Disease, but Huntington's Disease doesn't have me"... it came from James Valvano and every bit of that is true!
In this episode James talks about his advocacy work for Jane Kogan, Advocacy Manager at HDSA. Tune in for a really great show.
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