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Monday, April 9, 2012 at 3:30 pm PST/6:30 pm EST.
Our amazing guest tonight is Dr. Samuel Frank, Associate Professor of Neurology and co-Director of Neurology Resident Education at Boston University. Since completing his fellowship at the University of Rochester, he has been involved in many local and Huntington Study Group clinical trials and observational studies.
He has served on multiple steering and data safety monitoring committees for clinical trials, has an active HD clinic at Boston Medical Center and serves as the inpatient neurology consultant for the specialized HD service at Tewksbury State Hospital. He also sees patients through the regional Veterans Administration hospital.
“Advanced stage HD patients are a forgotten population. Many doctors let patients drop off their radar screen once they get admitted to a long term care facility. In fact, patients that require 24 hour care can live for 5-10 years or longer. Patients also progress through those stages and patients and families still want to participate in research, if possible. This population of HD patients is not well understood at all, but they have specific needs..." Dr. Samuel Frank
Join us tonight for a very educational and informative program as we discuss with Dr. Frank some common topics that arise considering patients with advanced Huntington's disease.
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