HELP 4 JHD ~ Natural History Study with Jane & Stacie

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Monday, October 10, 2011 - Our incredible special guests tonight are Jane Paulsen and Stacie Vik from the University of Iowa. UI is currently recruiting individuals who have shown features of JHD before the age of 20 to be a part of a Natural History Study to research the effectiveness of clinical measurements relating to Juvenile Hun tington’s Disease.

This study will compare the current adult version of the Unified Huntington’s Disease Rating Scale (UHDRS ‘99) with a new modified version specifically developed for the JHD population. The purpose of this research study is to better understand JHD, and to improve the currently available tools to follow the course of the disease in this younger age group.

Both parents and individuals affected by JHD who are interested in being involved in this research project are encouraged to contact Michelle Harreld at 319-384-1174 or michelle-harreld@uiowa.edu for more information.

We will also be discussing the JHD Qualitative Study at the University of Iowa. Tune in for a very informative program with Jane and Stacie. Go University of Iowa!!

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