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HELP 4 HD with Matty Ellison from the UK

  • Broadcast in Health
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SPECIAL GUEST: Matty Ellison from the UK….SUBJECT: Matty is working hard on a new project called the Huntington’s Disease Youth Organization (HDYO). HDYO will support young people from the HD community all over the world….Launching in late 2011, HDYO will be the first organization to specifically support young people from the HD community. The HDYO website will provide support, educational information and videos about HD, stories of young people’s experiences with HD and support forums will all be provided. It will also be available in a variety of languages, providing a place for young people from all over the world to connect and receive much needed support…..Why do young people from an HD family need support? HD is a devastating neurological disorder. The affects of HD on a family are enormous. Young people in particular face a tough time often having to watch a parent slowly deteriorate over many years. Many young people from the HD community provide care for their parent. Most will have lost other family members to HD. Due to psychological issues sometime caused by HD some young people may experience physical and emotional abuse. As a result, some young people may live outside the family home with relatives or even a foster family. Young people from an HD family have a 50% chance of inheriting HD from their parent. That knowledge is something young people at risk of HD have to come to terms with. To say that young people in an HD family have to be strong…is an understatement….TUNE IN to hear Matty from the UK talk about this wonderful new organization that will be a tremendous help and resource for our young people from the HD community. Thank you Matty for all your hard work!...Copy this link into your browser...http://www.youtube.com/watch?v=Hk021-xvhts