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The Roadmap to Success For Complex CHD Survivors Part 2

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Heart to Heart with Anna

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Last week we met Dr. Gil Wernovsky, a renowed pediatric cardiologist who has dedicated 30 years to treating babies born with congenital heart defects. We talked about a new approach that he designed by working collaboratively with doctors, nurses and parents. What he created was a "roadmap" for treating those babies born with the most complex heart defects. Last week we talked about why he created the roadmap, how it was similar to a maintenance program that is used for automotive care and how it was inspired by the board game Life.

In today's broadcast we delve deeper into why this roadmap concept is so important. We talk about what palliative care means in a medical setting and how that term is used differently for children with heart defects than with children who have cancer. We talked about Dr. Wernovsky's passions.

As a bonus, Dr. Wernovsky talked about his passion for music and how he has found that many others in the heart community share his passion for music. He introduces us to the Baby Blue Sound Collective and we even get to enjoy a song from the new CD that has been created and is being distributed just in time for Heart Month 2017. Home. Tonight. Forever. is the name of the CD that Dr. Wernovsky created with his band the Baby Blue Sound Collective. He shares with us how the money from the sale of the CD goes to fund congenital heart defect research.

Finally, Dr. Wernovsky shares his own personal advice about moving forward while living with a critical congenital heart defect. He discusses what parents need to do to help their children become involved and educated adult Heart Warriors. He also talks about how to maintain medical records that, hopefully, this roadmap concept will enhance. You won't want to miss this program!

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