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I have started to listen to the 8 hour video from the 2014 Epilepsy Pipeline Conference Family Day. I am about 3 hours into it and have taken away some very interesting information from it. I am looking forward to sharing more about this with you. Did you know that seizure meds while labeled AEDs are really ASDs? Seizure meds are that. Medications are tested for those with seizures not necessarily for Epilepsy. There is more. Check it out.
Want to listen to the conference yourself? Here is the link.
The intention of this forum is to share information. For as long as epilepsy has been around it is amazing how little is known, understood and shared. I have found the best places for information is through the Epilepsy Foundation's chat rooms, Epilepsy Facebook pages and local support groups. It is my hopes that this will become another place to support those who have or lend support to those with epilepsy.
I am a newbie to this scene with my teenage daughter in her first year with epilepsy. I am shocked at how difficult it has been to navigate the medical and educational systems. Systems that should be supportive to this condition.
So let's talk about epilepsy and share information that can help us all move forward.
Thank you to all who post information in forums. Your wisdom and sharing has greatly benefited our family in coming to better understand epilepsy and all that goes with it.
with love and appreciation,
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