NFA

4/28/2009 11:30 PM UTC

We had technical difficulties with Show #3. There's about a 2 minute pause, but after that, the interview resumes. Please stay tuned, until you hear Prof. Jones and Randy speaking. thanks!

mandy garrett

5/9/2008 1:52 AM UTC

Hi Lynne,i just been listening to your show which was great. I have had fm since year 2000 and it as turned my live up side down. I live in London England where fm still isnt excepted by alot of Drs who think its just in your head. Mandy

Douglas V. Gibbs

4/27/2008 5:21 AM UTC

As a Fibromyalgia sufferer, I appreciate your show.

Life Trekking Coach

4/26/2008 1:39 AM UTC

Hello! Your first show was awesome!! :)

Lese

4/25/2008 10:45 PM UTC

Hi Kelly Fay: Here is what's helping me finally. I found a pain doc who knows what drugs to give. He also injects my stiffest joints so I can get moving. I get moving in a hot tub and stretching is down with help of physio. Body work must be done constantly dispite fibro-aches and sleepiness. I fall asleep just waiting for my appointment and I'm so sad I cry that I have to do this. My thoughts are with you and I send you strength to get thru each day.

Kellie_Fay

4/25/2008 9:18 PM UTC

I heard about possible scholarships or get someone to help for me to virtually walk for FM if there is anyone in San Antonio, Texas area (I live in Floresville south of the metro area) like would like to gather my email is Kellie_Fay_13@hotmail.com and we could try to figure out sponsorship. I am trying to get our local firefighters here to walk with me at the park but am open for any help. Also, if you have FM and having problems with finding medical support in Floresville, TX 78114 my physician Dr. Machelle Williams actually suffered herself and is very understanding and wonderful.

Kellie_Fay

4/25/2008 9:04 PM UTC

I have been diagnosed with FM since 2003 although it seems like a lifetime. I literally went from complete physical fitness to total disarray and still know one knows what causes our suffering. I have been on disability and Medicare actually makes a HUGE difference; I was denied three times over three years and finally hired a lawyer but now I feel "slightly" more validated with my disease. I have two babies 6 years old and 3 years old and am only 31 myself and it is heartbreaking to see the look in their and my husband's eyes when he tells the kids that mommy is so sick she can't get up today. I hear them outside playing and they always bring me a barrage of baby dolls, their own special blankets, water or even dinner, and plenty of kisses and hugs. The suffers are also our family my son grew up too fast knowing how to dial 911 at 1 and 1/2 years old if mommy fell and got sick they are aware but unafraid, this is our life. I advise anyone to keep up with the treatment and also my bi-polar disorder did not manifest until the depression from FM (I don't know if it would have been a problem or not without my FM) but regardless I want to let you also know you are not alone!!!

Cinda Crawford

4/25/2008 5:52 PM UTC

Lynne, Fantastic work you're doing. FMS people need so much help and they deserve it! The number of people with FMS is a tragedy and many of them are not taken seriously. I "vote" for More Awareness and More Help, how about you? Cinda Crawford, host of the Health Matters Show

John Finnell

4/25/2008 5:47 PM UTC

Hi Lynne, That was a wonderful talk today and am excited about the FMS Awareness day and your event. Also want to thank you for organizing the efforts at the Sacramento Capitol last month. John (Auburn, CA)

EMF

4/25/2008 5:36 PM UTC

Hello: I was very pleased to listen to the interview with Lynne. I applaud her work. I was diagnosed w/ FM in 1995 but was in so much pain for several years that I had to quit work in 1994. The support groups have been so helpful in keeping my sanity and providing new information and helpful hints on how to manage and survive. Thank you for helping people understand the invisible pain we have & raising awareness. Ellie from Tacoma WA

Wendim

4/25/2008 5:25 PM UTC

I am 31 years old a& suffer from most of the problems associated with fibromyalgia. I am at that point that I am not very active & feal like I do not have the energy to do anything. It gets worse everyday. My husband does not understand why I am this way. I am just now getting more info. about this. I do not have the ins. to afford the proper treatment for this. It has been an up & down battle for several years now. I found out that I have this about 2 yrs ago. Right now I can't afford to treat this. This is why I am doing so much research online. My mother also has this & she would love to have me learn more to help her also. Thanks, Wendi 317-431-2585

Lizzie Lu

4/25/2008 4:59 PM UTC

Do I need to call the number to listen or will I hear it the webinar online?

cyndig123

4/25/2008 4:28 PM UTC

Lynne: Thank You for all you are doing to raise awareness of Fibromyalgia. You are really helping those of us with FMS.

Grams2005

4/25/2008 3:09 PM UTC

Hi Lynne - I have Fibromyalgia and really appreciate all your hard work.

Habiba2659

4/24/2008 11:28 AM UTC

Hi Lynne, I would just like to add my thanks too for all your hard work on behalf of FMS sufferers and would like to second OzLaura's comment that it affects many people all all the world.I live in the U.K and am still coming across Doctors and Nurses who have no knowledge about this condition and/or do not believe it is real. Keep up the good work!!! U.K Habiba

OzLaura

4/24/2008 3:39 AM UTC

Hi Lynne, have been watching all the good work you have been doing for FMS sufferers. It not only affects Americans but sufferers from around the world. Unfortunately, we need a louder voice to help us too. Keep up the good work. OzLaura