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After introduction and disclaimer, Dr Synonymous (aka, Dr Jonas) comments on recent events with the death of his father in law. Next he discusses a rare disease: fibrodysplasia ossificans progressiva (FOP). He follows information about it through the IFOP web site/ Facebook site, then to NHGRI and OMIM with in depth comments from those sites.
He notes a feature about Behcet's Syndrome on the NHGRI site before speaking of National Rare Disease Day, February 28th. He then reviews Patient and Health Care Blogs including Dr Fat to Fit, Final Trick and Medical Mojave. Dr Kenny Lin writes about recent medical studies on Common Sense Family Physician.
Remember National Rare Disease Day.
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