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Meet Liz Donohue, Director-Rare Disease Research at Sanford

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Dr Diane Dike

Dr Diane Dike

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Liz is the amazing, Director at CoRDS. Today we will learn what the Coordination of Rare Diseases at Sanford (CoRDS) is doing to help people with rare disease.

Liz will share important information because CoRDS is a registry that stores information on individuals affected by a rare disease to help accelerate research into rare diseases. It was developed because access to information about rare diseases presents a challenge to researchers, physicians, patients and their families.

CoRDS provides a better way for researchers conducting research studies or clinical trials to search for individuals who are interested and may be able to participate in their clinical trial. The CoRDS registry also keeps individuals and families aware of the opportunities to participate in research studies or clinical trials.

To help us celebrate the launch of the worlds first Cryoglobulinemia Vasculitis Organization (CVO) website Liz is joining us to educate us and help us learn more about important research opportunities.

*To clarify: In reference to Mayo Clinic. Diane meant to say the one in MN is the only one of the Mayo clinics that is dealing with Cryo at this time. Not that it's the only clinic dealing with cryo.

http://www.cryoglobulinemiavasculitis.org/

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