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Profile

CushingsHelp

http://www.cushings-help.com


Country: United States

Language: English

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Comments

Menopause/PowerSurge

Menopause/PowerSurge

I so enjoyed the interview with Cushing's Help Founder, Mary O'Connor. Jayne, you did a great job! I've had the pleasure of knowing Mary since before Cushings-Help.com became a reality. Mary puts an unusual amount of time and effort into her incredibly informative and invaluable Web site. Mary IS Cushing's Help. If there's any new technology where Mary can spread the word about Cushing's, she'll find it. This new blogtalkradio is another excellent venue where Mary can continue her endless help for those suffering from Cushing's and related disorders. I'm personally so proud of all that she's accomplished, especially when through it all, she's still dealing with her own health issues, but that doesn't stop her! I'm proud to call her my "friend." Keep up the good work, MaryO! Alice Stamm (aka Dearest)

glandular-mass

glandular-mass

YAY! This is another awesome way to improve awareness!

leftiejan

leftiejan

Yes Mary this site is Great!! I have been here for a long time. I was here in the beginning right after you started the site. Thanks for everything!!! Janie

fatnsassy

fatnsassy

Thank you Mary for all you do for us! You are awesome! Hugs! Gracie

CushingsHelp  

Welcome to Cushing's Help and Support. Mary O'Connor (MaryO) is the founder of http://www.cushings-help.com . This site provides information, support, RSS feedsnews, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies

  • Featured Episode

    Date / Time:

    Category: Health


    Interview with Mary O'Connor (MaryO), founder of Cushings-Help.com and 20-year pituitary Cushing's Survivor. Robin (staticnrg) hosts.
  • On Demand Episodes

    Original Air Date:

    Second Interview with Gracie

    Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview Gracie again. Gracie (fatnsassy) has been dealing with Cushing's symptoms for about 14 years. She began testing in California with Dr. Ted Friedman June, 2007 and she was diagnosed in May, 2008 with cyclical Cushing's disease. She saw Dr. Hae-Dong Jho and arranged for her pituitary surgery in Philadelphia, Pa, in August, 2008. This is her first post-op interview.

  • Original Air Date:

    Interview with Stacey (stacey)

    Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview Stacey. Stacey will be one year post-op at the time of the interview. She will have been to her 1 year appointment and will give a full update of her recovery.

  • Original Air Date:

    Interview with SusanM

    Join us as Mary O'Connor (MaryO) and Robin Smith (staticnrg) interview long time Cushing's patient Susan (SusanM). Susan writes: Susan writes: As you may have read in my other post, I retired from a 28-year career at a major health insurance company (one of the big five) on March 31. 2008. I am happy with this achievement, however, much more proud of the actions I took to reach that achievement. Why so? For 27 of those 28 years, I had faced Cushings and we all know what difficulty that may bring. In 2003, I had the pit surgery and became quite ill in 2004. It wasn't until November, of 2005 that I had the BLA which brought about some relief. During all of this, I worked full time consistently until 2004 when I had to take some time off of work. I was GH deficient and had the episode of congestive heart failure. Once back at work, I applied for a work accommodation to work at home on Monday and Friday under the Americans with Disabilities Act. It was granted and I was provided with a full computer set up at home as well as the one at work. This made a great difference in my being able to work or not. Not driving the 26 miles each way to work as well as being at home continued my work. Another thing I did was to work with my PCP to be accepted into the Physical Rehab at the local hospital. It provided medically-monitored exercise (up to 5 days a week) and my muscles recovered well during this time. I had difficulty with shortness of breath due to the weak muscles around my lungs and this was a positive step to correct that situation. What else did I do to keep myself working during this timeframe? I worked incredibly hard on achieving a positive mental attitude! I meditated, performed self-hypnosis, and found a support system that worked for me. This foundation made the better days better and difficult days a bit less difficult. Can someone with Cushings continue working? In my opinion, YES. What it takes, however, is the drive to keep going and a bun

  • Original Air Date:

    October 2, 2008: Dr. Rob will be interviewed by Robin (staticnrg) and Mary O'Connor (MaryO)

    Dr Rob writes in his very popular blog: "I am a practicing primary care physician in the Southeastern US, caring for patients of all ages (Board Certified in both Internal Medicine and Pediatrics). This blog covers a wide variety of issues, including the following: What it is like to be a physician, dogs driving cars, what troubles are in our system, toddlers with flame-throwers, what would it take to fix that system, llamas, death and dying issues, mutants, and accordions. Maybe I need to write about mutant dying accordions with flame-throwers. Hmmm....I feel a post coming. Anyhow, I like variety. Life is always lived with both laughter and tears. If you are a regular reader of this blog, it is also filled with nausea and nightmares. Thanks for stopping by. -Dr. Rob"

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