Live chat about Cerebral Palsy and Cri-du-Chat syndrome

Sharon Byfield. The mother of Joey. I'm a loving mother of four. I love children and love working with them and helping them. I've been a foster mother for over 20 years and I've worked with pregnant teens, Medical Fragile babies, and Special Needs children. We have four children in which we love so dearly. Joey Byfield is a 12 year old boy who has Cru-de-Chat, Cerebral Palsy, and is also fed by a G-Tube. He doesn't walk or talk. But he's a loving boy and his spirit is as joyous as can be. He loves soft music, but he's a fan of Bob Marley. He will move those legs of his to jam to Bob Marley all day if he could. Joey is in need of a medical fragile bed that is very expensive, that will prevent him from falling out of bed, due to the fact that he can not break his falls. Joey has two sisters, an older brother; in which the youngest sister is medical fragile too. Joey wants to be where all the fun is and lives life to the fullest, omitting his situation.We hope this beautiful celebration can help him continue his life in a fulfilling way.

Cri du chat syndrome, also known as chromosome 5p deletion syndrome, 5p minus syndrome or Lejeune’s syndrome, is a rare genetic disorder due to a missing part of chromosome 5. Its name is a French term (cat-cry or call of the cat) referring to the characteristic cat-like cry of affected children. It was first described by Jérôme Lejeune in 1963. The condition affects an estimated 1 in 50,000 live births, strikes all ethnicities, and is more common in females by a 4:3 ratio