Our Terms of Use and Privacy Policy have changed. We think you'll like them better this way.

Silvia Corradin

Butterfly Talk

Edit Profile
Episodes
16
Followers
Listens
4190
×  

Follow This Show

Stay in the know about new episodes and updates.
Education about Epidermolysis Bullosa, support and encouragement, tips and general information regarding advocacy and need for awareness. Would like to be a guest and talk about your EB experience? Message me!!

On-Demand Episodes

Silvia Corradin

Dealing with Anemia with Epidermolysis Bullosa - A general and personal experience with the Recessive Dystrophic form
Play Now
Silvia Corradin

Lots of Information about Epidermolysis Bullosa from the ebinfoworld.com website
Play Now
Silvia Corradin

Dennis Vanasse is the author of several children's books, including "Everyone Belongs," which is about a young boy who has Epidermolysis Bullosa. Dennis' passion is working with special needs children. His children's books help... more
Play Now
Silvia Corradin

Epidermolysis Bullosa is a rare genetic skin condition-not only it's rare so people in general are not aware of it, the way it manifests itself and how it's inherited is very confusing. In this Podcast I will attempt at explaining EB in the... more
Play Now
Silvia Corradin

In 1996, Francesca Tenconi was diagnosed with Pemphigus Foliaceous, a life-threatening auto-immune based skin disease. She and the other children she met while receiving medical care felt isolated and had no organization... more
Play Now
Silvia Corradin

Kenny Breaux's son Davion has Recessive Dystrophic EB. Davion, AKA, "D-Money," is dancing to a style of music called dubstep he taught himself by watching YouTube videos. But, Davion isn't just dancing for fun, he's raising... more
Play Now
Silvia Corradin

Photographer Jodi Champagne lives in Palmdale, California, and her goal is to tell a story, raise awareness, make a difference. She has traveled worldwide to capture humanity with compassion and heart. Her photographs have appeared... more
Play Now
Silvia Corradin

Epidermolysis Bullosa is a rare genetic skin disorder. One thing to describe its rareness is that a doctor or a nurse can be working a lifetime and never bump into this condition. Because of this, there is a lot unknown about the condition and... more
Play Now
Silvia Corradin

In honor of EB Awareness week today we'll be joined by Christie Zink, founder of "I Refuse EB" and her efforts to raise Awareness and funds to find a cure for Epidermolysis Bullosa. irefuseEB.org was launched in 2012 to help raise... more
Play Now
Silvia Corradin

About Jennifer in her own words: My name is Jennifer (Lyric) Bolles. I was born in FL and have lived in many different states throughout my life. Currently, and indefinitely, I am in Cincinnati, OH. I moved here almost 6 years ago for the EB... more
Play Now

Facebook comments

Available when logged-in to Facebook and if Targeting Cookies are enabled