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Living with OI (Osteogenesis Imperfecta)

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Beautiful Butterfly

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Welcome To The Beautiful Butterfly Show... During this Segment we will be Discussing LIVING WITH OI ( Osteogenesis Imperfeta). . Osteogenesis imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her life time. 

Today we will be Joined by Lavina Missie Jackson who is a parent of a daughter that has OI, and is also an Advocate for it as well and Founder of Lions Heart Network.

The Jackson Family consists of Tyler Smith, 16, Tory Jackson-Smith, 12, and Tabytha Brown, 9, Kissez, the dog, Turbo, the turtle, and Mittens the cat. We have lived in Greensboro 5 years. Lavinia is USCG Veteran who was honorably discharged to take care of Tabytha, after she was diagnosed with OI and couldn't find proper care. Beyond taking care of 3 gifted children, Lavinia has remained active in the community. Lavinia is one of the co-founders of Sigma Theta Lambda, a literary sorority. She is a trustee at Persimmon Grove AME. She is the founder of PEACE Camp. She co-facilitates the Friendship Community Partnership. Lavinia worked with Reading Connections, as a member of The Mission Continues, in Family Literacy. She sits on the board for Royal Expressions Contemporary Ballet. Lavinia supports Poetry events in the city, as well.

 

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