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Welcome To The Beautiful Butterfly Show... During this Segment we will be Discussing LIVING WITH OI ( Osteogenesis Imperfeta). . Osteogenesis imperfecta (OI) is a genetic disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her life time.
Today we will be Joined by Lavina Missie Jackson who is a parent of a daughter that has OI, and is also an Advocate for it as well and Founder of Lions Heart Network.
The Jackson Family consists of Tyler Smith, 16, Tory Jackson-Smith, 12, and Tabytha Brown, 9, Kissez, the dog, Turbo, the turtle, and Mittens the cat. We have lived in Greensboro 5 years. Lavinia is USCG Veteran who was honorably discharged to take care of Tabytha, after she was diagnosed with OI and couldn't find proper care. Beyond taking care of 3 gifted children, Lavinia has remained active in the community. Lavinia is one of the co-founders of Sigma Theta Lambda, a literary sorority. She is a trustee at Persimmon Grove AME. She is the founder of PEACE Camp. She co-facilitates the Friendship Community Partnership. Lavinia worked with Reading Connections, as a member of The Mission Continues, in Family Literacy. She sits on the board for Royal Expressions Contemporary Ballet. Lavinia supports Poetry events in the city, as well.
It's good to talk.