https://www.blogtalkradio.com/alscrowdA show connecting ALS patients with top researchers to educate and empower patients and to narrow the gap between the research and patient communities.enCopyright Seth Christensen (C/O Blogtalkradio)Wed, 04 Sep 2019 10:15:00 GMTTue, 17 May 2016 17:00:00 GMTHealthBlogTalkRadio Feed v2.0https://dasg7xwmldix6.cloudfront.net/hostpics/c18aba13-a782-424e-b555-227bfa694faa_als-crowd-blogtalk-radio-logo-2-600x600.jpghttps://www.blogtalkradio.com/alscrowdA show connecting ALS patients with top researchers to educate and empower patients and to narrow the gap between the research and patient communities.christensen.seth@gmail.comALS Crowd Radiohealth,als,als crowd,alscrowd,lou gehrig's syndrome,mnd,alsa,amyotrophic lateral sclerosis,lou gehrig's disease,lou gehrigsALS Crowd RadionoA show connecting ALS patients with top researchers to educate and empower patients and to narrow the gap between the research and patient communities.episodichttps://www.blogtalkradio.com/alscrowd/2016/05/17/als-crowd-radio-dr-avindra-nath-md-an-activated-virus-causing-alsHealthhttps://www.blogtalkradio.com/alscrowd/2016/05/17/als-crowd-radio-dr-avindra-nath-md-an-activated-virus-causing-als/#commentshttp://www.blogtalkradio.com/alscrowd/2016/05/17/als-crowd-radio-dr-avindra-nath-md-an-activated-virus-causing-alsTue, 17 May 2016 17:00:00 GMTALS Crowd Radio: Dr. Avindra Nath, MD: An Activated Virus Causing ALS?Dr. Nath is an expert in viruses and retroviruses.  He speaks about studying human endogenous retrovirus-K (HERV-K) in the context of ALS, and why it could be important.  HERV-K is normally dormant, but Dr. Nath's study found that in ALS patient brains it has been activated at fairly high levels. HERV-K creates proteins that are toxic to neurons, which points to a possible cause for sporadic ALS.  Dr. Nath believes that antiviral drugs could be used to inhibit HERV-K, and possibly alter the course of ALS.  More research and testing is underway, along with an intense search for an ALS biomarker to use in human clinical trials to prove effectiveness of these treatments. Many antiviral drugs are already FDA approved and commonly prescribed for use in HIV treatment. Dr. Avindra Nath is the Clinical Director of the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of Health. Prior to joining the NIH in 2011, he was the Director of the Division of Neuroimmunology and Neurological Infections at Johns Hopkins University for 9 years. His current responsibilities are to oversee and build the clinical research program at NINDS. He is also the Director of the Translational Neuroscience Center. The office has a clinical trials unit that provides assistance in all stages of protocol development and monitoring. It also oversees a unique training program for clinical fellows and residents in Neurology and Neurosurgery. The office oversees a variety of specialized clinics and provides services for investigation and consultation for patients with neurological disorders. 00:36:00ALS Crowd RadionoALS,Dr. Avi Nath,HERV-KA virus which is normally dormant could be activating and causing sporadic ALS. Could antiretroviral drugs, which are already on the market, be the treatment?https://www.blogtalkradio.com/alscrowd/2016/05/09/als-crowd-radio-barbara-newhouse-dr-lucie-bruijn-als-advocacyHealthhttps://www.blogtalkradio.com/alscrowd/2016/05/09/als-crowd-radio-barbara-newhouse-dr-lucie-bruijn-als-advocacy/#commentshttp://www.blogtalkradio.com/alscrowd/2016/05/09/als-crowd-radio-barbara-newhouse-dr-lucie-bruijn-als-advocacyMon, 09 May 2016 20:00:00 GMTALS Crowd Radio: Barbara Newhouse & Dr. Lucie Bruijn: ALS AdvocacyS2:E5 ALSA President and CEO Barbara Newhouse and Chief Scientist Dr. Lucie Bruijn will speak live from Washington DC at the National ALS Advocacy Day and Public Policy Conference.  They will share the advocacy work on Capitol Hill that the National ALS Association is doing and what people with ALS can do to help.   00:42:00ALS Crowd RadionoALS,ALSA,Barbara Newhouse,Dr. Lucie BruijnALSA President and CEO Barbara Newhouse and Chief Scientist Dr. Lucie Bruijn about ALS Advocacyhttps://www.blogtalkradio.com/alscrowd/2016/05/04/als-crowd-radio-dr-richard-bedlackmd-phd-ms-duke-university-als-reversalsHealthhttps://www.blogtalkradio.com/alscrowd/2016/05/04/als-crowd-radio-dr-richard-bedlackmd-phd-ms-duke-university-als-reversals/#commentshttp://www.blogtalkradio.com/alscrowd/2016/05/04/als-crowd-radio-dr-richard-bedlackmd-phd-ms-duke-university-als-reversalsWed, 04 May 2016 17:00:00 GMTALS Crowd Radio: Dr. Richard Bedlack,MD, PhD, MS Duke University: ALS ReversalsS2:E4 Dr. Richard Bedlack, MD will describe the ALS Reversals program in detail.  Once it starts, ALS almost always continues to progress, disable and shorten lives. Very rarely, a patient with a confirmed diagnosis of ALS gets better on validated ALS outcome measures.  It is worth studying these ALS reversals to try and replicate them in other patients. Dr. Richard Bedlack, grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and PhD in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research Science. He is currently a tenured Associate Professor of Medicine/Neurology at Duke, Director of the Duke ALS Clinic, and Chief of Neurology at the Durham Veterans Affairs Medical Center. He has won awards for teaching and patient care, including best Neurology teacher at Duke, Health Care Hero, Strength Hope and Caring Award, America’s Best Doctor, the American Academy of Neurology Patient Advocate of the Year and the Rasmussen ALS Patient Advocate of the Year. He has received ALS research grants, participated in ALS clinical trials, published more than 60 ALS articles and recently edited a new book called ALS: A Patient Care Guide for Clinicians. He is the outgoing Chairman of the North American ALS Research Group (ALSRG) and leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off label treatment options for patients with ALS. He lives in Durham, North Carolina with his wife Shelly and two mischievous kittens. 00:52:00ALS Crowd RadionoALS,Dr. Richard Bedlack,ALS ReversalsALS reversals are extremely rare, but worth studying to see what can be learned for other ALS diagnoseeshttps://www.blogtalkradio.com/alscrowd/2016/04/28/als-crowd-radio-dr-paul-cox-phd-environmental-causes-of-alsHealthhttps://www.blogtalkradio.com/alscrowd/2016/04/28/als-crowd-radio-dr-paul-cox-phd-environmental-causes-of-als/#commentshttp://www.blogtalkradio.com/alscrowd/2016/04/28/als-crowd-radio-dr-paul-cox-phd-environmental-causes-of-alsThu, 28 Apr 2016 19:00:00 GMTALS Crowd Radio: Dr. Paul Cox, PhD, Environmental Causes of ALSS2:E3 Dr. Paul Alan Cox, Ph.D., Director of the Institute for Ethnomedicine, will speak about his research in finding and fighting the environmental causes of ALS.  Dietary exposure to an environmental toxin called BMAA may trigger ALS related symptoms.   Large doses of the dietary amino acid called L-serine may reduce the risk of BMAA exposure.  Dr. Cox published his most recent findings in the Proceedings of the British Royal Society published on Jan 20, 2016. A Harvard Ph.D., Paul Alan Cox has spent his career searching for new medicines by studying patterns of wellness and disease among indigenous peoples. For these efforts, TIME magazine named Cox one of 11 “Heroes of Medicine.” His work with indigenous peoples in preserving their island rain forests won him the Goldman Environmental Prize. Cox has published over 200 scientific papers and four books. He has held academic appointments at the University of California, Berkeley, Brigham Young University, the University of Melbourne, Uppsala University, the Swedish Agricultural University, and the University of Illinois, Chicago, and served as Director of the Congressionally-chartered National Tropical Botanical Gardens in Hawaii and Florida. Cox founded Seacology, the world’s premier environmental non-profit organization for island conservation, headquartered in Berkeley, California. Through partnerships with indigenous people, Seacology has now saved over 1.3 million acres of island rainforests and coral reefs in 56 nations. Throughout Polynesia, he is known by the chiefly title Nafanua. Cox currently serves as the Executive Director of the Institute for Ethnomedicine in Jackson Hole, Wyoming. His research there is focused on finding and fighting the causes of neurodegenerative disease including ALS and Alzheimer’s disease.     00:55:00ALS Crowd RadionoALS,BMAA,Paul CoxDr. Paul Cox shares research in finding and fighting the environmental causes of ALS, specifically a nerve toxin called BMAA.https://www.blogtalkradio.com/alscrowd/2016/04/19/als-crowd-radio-dr-joseph-beckman-phd-oregon-state-u-stopping-als-in-labHealthhttps://www.blogtalkradio.com/alscrowd/2016/04/19/als-crowd-radio-dr-joseph-beckman-phd-oregon-state-u-stopping-als-in-lab/#commentshttp://www.blogtalkradio.com/alscrowd/2016/04/19/als-crowd-radio-dr-joseph-beckman-phd-oregon-state-u-stopping-als-in-labTue, 19 Apr 2016 18:00:00 GMTALS Crowd Radio: Dr. Joseph Beckman, Ph.D., Oregon State U: Stopping ALS in LabS2:E2 Dr. Joseph Beckman, Ph.D. will speak about his research findings that have essentially stopped the progressions of ALS for nearly two years in one type of mouse model used to study the disease.  This has allowed the mice to approach their normal lifespan.  The new therapy uses a copper-ATSM compound.  The findings of the study were published in the journal of Neurobiology of Disease in Jan 2016.  Joseph Beckman is a distinguished professor of biochemistry and biophysics in the College of Science at Oregon State University, and principal investigator and holder of the Burgess and Elizabeth Jamieson Chair in OSU’s Linus Pauling Institute.  He will explain the study, what will come next in the research process, and what this means for ALS patients. 00:47:00ALS Crowd RadionoALS,ALS Crowd Radio,Joseph BeckmanDr. Joseph Beckman's therapy has essentially stopped the progression of ALS for nearly two years in one type of mouse model used to study the disease.https://www.blogtalkradio.com/alscrowd/2016/04/12/als-crowd-radio-dr-merit-cudkowicz-md-on-progress-since-ice-bucket-challengeHealthhttps://www.blogtalkradio.com/alscrowd/2016/04/12/als-crowd-radio-dr-merit-cudkowicz-md-on-progress-since-ice-bucket-challenge/#commentshttp://www.blogtalkradio.com/alscrowd/2016/04/12/als-crowd-radio-dr-merit-cudkowicz-md-on-progress-since-ice-bucket-challengeTue, 12 Apr 2016 18:00:00 GMTALS Crowd Radio: Dr. Merit Cudkowicz, MD, on Progress Since Ice Bucket ChallengeDr. Merit Cudkowicz will kick off ALS Crowd Radio Season 2 with an overview of the state of ALS research and treatment today.  As director of MDA ALS Clinic at Massachusetts General Hospital and Professor of Neurology at Harvard Medical School, Dr. Cudkowicz is involved in every aspect of ALS research and treatment including: diagnosing and treating patients, clinical trials, research projects, and the search for a biomarker.  She will give an overarching view of what is happening in this constantly progressing field and what it means for ALS patients. 00:48:00ALS Crowd RadionoALS,ALS Crowd,Merit CudkowiczWhat is the current state of ALS discoveries?https://www.blogtalkradio.com/alscrowd/2016/01/07/als-crowd-radio-dr-alfred-goldberg-phd-harvard-medical-schoolHealthhttps://www.blogtalkradio.com/alscrowd/2016/01/07/als-crowd-radio-dr-alfred-goldberg-phd-harvard-medical-school/#commentshttp://www.blogtalkradio.com/alscrowd/2016/01/07/als-crowd-radio-dr-alfred-goldberg-phd-harvard-medical-schoolThu, 07 Jan 2016 18:00:00 GMTALS Crowd Radio: Dr. Alfred Goldberg, PhD, Harvard Medical SchoolBorrowing from one cancer treatment to treat another is common, but the insights learned from a cancer treatment class of drugs could be applied to neurological disorders like ALS. Dr. Alfred Goldberg, PhD of Harvard Medical School has deep expertise in proteasome inhibitors. These drugs are commonly used in blood cancers, but he has found a potential use for them in neurological disorders including ALS.  01:01:00ALS Crowd RadionoALS,Lou Gherig's Disease,Harvard,Dr. Alfred GoldbergUsing a Cancer Drug for ALS Patientshttps://www.blogtalkradio.com/alscrowd/2015/02/26/als-crowd-radio-dr-jonathan-katz-on-the-right-to-treatHealthhttps://www.blogtalkradio.com/alscrowd/2015/02/26/als-crowd-radio-dr-jonathan-katz-on-the-right-to-treat/#commentshttp://www.blogtalkradio.com/alscrowd/2015/02/26/als-crowd-radio-dr-jonathan-katz-on-the-right-to-treatThu, 26 Feb 2015 19:30:00 GMTALS Crowd Radio: Dr. Jonathan Katz on the "Right to Treat"ALS Crowd Radio: Dr. Jonathan Katz on the "Right to Try" 01:08:00ALS Crowd RadionoALS,Lou Gehrig's Disease,MND,Jonathan Katz,ALS CrowdALS Crowd Radio: Dr. Jonathan Katz on the "Right to Try"https://www.blogtalkradio.com/alscrowd/2014/11/19/als-crowd-radio-dr-richard-bedlack-investigating-alternative-als-treatmentsHealthhttps://www.blogtalkradio.com/alscrowd/2014/11/19/als-crowd-radio-dr-richard-bedlack-investigating-alternative-als-treatments/#commentshttp://www.blogtalkradio.com/alscrowd/2014/11/19/als-crowd-radio-dr-richard-bedlack-investigating-alternative-als-treatmentsWed, 19 Nov 2014 17:30:00 GMTALS Crowd Radio: Dr. Richard Bedlack, investigating alternative ALS treatmentsHow do we, as the ALS patients,  assess is the validity of the alternative or off-label treatments we hear about through friends and family or to the media? ALS expert Dr. Richard Bedlack of Duke University will discuss his research and leadership of ALS Untangled-- "A Scientific Approach to Off-Label Treatment Options for People with ALS Using Tweets and Twitters".This series is created to connect ALS patients with the ALS research community, to educate and empower them to make educated choices about their care. Listen in to this important show. 00:55:00ALS Crowd RadionoALS,Lou Gehrig's syndrome,Lou Gehrig's,MND,alternative medicineHow do we, as the ALS patients,  assess is the validity of the alternative or off-label treatments we hear about through friends and family or to the media? ALShttps://www.blogtalkradio.com/alscrowd/2014/11/05/als-crowd-radio-dr-eva-feldman-on-als-stem-cell-researchHealthhttps://www.blogtalkradio.com/alscrowd/2014/11/05/als-crowd-radio-dr-eva-feldman-on-als-stem-cell-research/#commentshttp://www.blogtalkradio.com/alscrowd/2014/11/05/als-crowd-radio-dr-eva-feldman-on-als-stem-cell-researchWed, 05 Nov 2014 19:00:00 GMTALS Crowd Radio: Dr. Eva Feldman on ALS stem cell research Join us for our interview with Dr. Eva Feldman of the University of Michigan. Topics will include Dr. Feldman expertise in ALS stem cell research. 00:47:00ALS Crowd RadionoJoin us for our interview with Dr. Eva Feldman of the University of Michigan. Topics will include Dr. Feldman expertise in ALS stem cell research.https://www.blogtalkradio.com/alscrowd/2014/10/15/als-crowd-radio-dr-jeffrey-rothstein-md-phd-johns-hopkins-medicineHealthhttps://www.blogtalkradio.com/alscrowd/2014/10/15/als-crowd-radio-dr-jeffrey-rothstein-md-phd-johns-hopkins-medicine/#commentshttp://www.blogtalkradio.com/alscrowd/2014/10/15/als-crowd-radio-dr-jeffrey-rothstein-md-phd-johns-hopkins-medicineWed, 15 Oct 2014 18:00:00 GMTALS Crowd Radio: Dr. Jeffrey Rothstein, MD, PhD, Johns Hopkins MedicineLearn more about the deep work being done by Dr. Jeffrey Rothstein at the Brain Science Institute at Johns Hopkins in ALS research and how collaboration of many institutions can drive ALS research at a faster pace. 01:05:00ALS Crowd RadionoALS,Lou Gehrig's syndrome,team Gleason,IATI,brain therapyLearn more about the deep work being done by Dr. Jeffrey Rothstein at the Brain Science Institute at Johns Hopkins in ALS research and how collaboration of manyhttps://www.blogtalkradio.com/alscrowd/2014/10/03/als-crowd-interviewed-by-ksls-doug-wrightHealthhttps://www.blogtalkradio.com/alscrowd/2014/10/03/als-crowd-interviewed-by-ksls-doug-wright/#commentshttp://www.blogtalkradio.com/alscrowd/2014/10/03/als-crowd-interviewed-by-ksls-doug-wrightFri, 03 Oct 2014 20:30:00 GMTALS Crowd interviewed by KSL's Doug WrightSeth and Amy Christensen, and Paul Ahlstrom, were interviewed by KSL 1160's Doug Wright on Thursday, October 2, 2014. Click here to listen. 00:19:00ALS Crowd RadionoALS,Lou Gehrig's syndrome,motor neuron disease,ALS crowd,crowdcareSeth and Amy Christensen, and Paul Ahlstrom, were interviewed by KSL 1160's Doug Wright on Thursday, October 2, 2014. Click here to listen.https://www.blogtalkradio.com/alscrowd/2014/09/29/als-crowd-radio-barb-newhouse-president-ceo-the-als-associationHealthhttps://www.blogtalkradio.com/alscrowd/2014/09/29/als-crowd-radio-barb-newhouse-president-ceo-the-als-association/#commentshttp://www.blogtalkradio.com/alscrowd/2014/09/29/als-crowd-radio-barb-newhouse-president-ceo-the-als-associationMon, 29 Sep 2014 19:00:00 GMTALS Crowd Radio: Barb Newhouse; President & CEO--the ALS AssociationJoin us for our interview with Barb Newhouse, President and CEO of the ALS Association,. Discussion topics will include the Association's mission and vision, the ice bucket challenge, and emerging topics in the field of ALS research. 00:58:00ALS Crowd RadionoALS,lou gerhigs,alsa.org,Alscrowd.org,icebucketchallengeJoin us for our interview with Barb Newhouse, President and CEO of the ALS Association,. Discussion topics will include the Association's mission and vision, thhttps://www.blogtalkradio.com/alscrowd/2014/08/27/als-crowd-radio-dr-nazem-atassi-md-1Healthhttps://www.blogtalkradio.com/alscrowd/2014/08/27/als-crowd-radio-dr-nazem-atassi-md-1/#commentshttp://www.blogtalkradio.com/alscrowd/2014/08/27/als-crowd-radio-dr-nazem-atassi-md-1Wed, 27 Aug 2014 20:00:00 GMTALS Crowd Radio: Dr Nazem Atassi MDDr Nazem Atassi will be speaking about advanced imaging.  00:55:00ALS Crowd RadionoALS,Lou GehrigsDr Nazem Atassi will be speaking about advanced imaging.https://www.blogtalkradio.com/alscrowd/2014/08/21/als-crowd-radio-dr-summer-gibson-mdHealthhttps://www.blogtalkradio.com/alscrowd/2014/08/21/als-crowd-radio-dr-summer-gibson-md/#commentshttp://www.blogtalkradio.com/alscrowd/2014/08/21/als-crowd-radio-dr-summer-gibson-mdThu, 21 Aug 2014 16:00:00 GMTALS Crowd Radio: Dr Summer Gibson, MDJoin us Thursday, August 21, 2014 for an interview with Dr Summer Gibson about next generation ALS research. 01:06:00ALS Crowd RadionoALS,alscrowd,lou gerhigs,university of utah,Dr Summer GibsonJoin us Thursday, August 21, 2014 for an interview with Dr Summer Gibson about next generation ALS research.https://www.blogtalkradio.com/alscrowd/2014/08/01/als-crowd-radio-dr-michael-weiss-mdHealthhttps://www.blogtalkradio.com/alscrowd/2014/08/01/als-crowd-radio-dr-michael-weiss-md/#commentshttp://www.blogtalkradio.com/alscrowd/2014/08/01/als-crowd-radio-dr-michael-weiss-mdFri, 01 Aug 2014 17:30:00 GMTALS Crowd Radio: Dr Michael Weiss, MDJoin us Friday, August 1, 2014 for an interview with Dr Michael Weiss about his research in neurological disease and the place of ALS among these disorders.   01:13:00ALS Crowd RadionoALS,ALScrowd,lou gehrigs,university of washington,Dr Michael WiessJoin us Friday, August 1, 2014 for an interview with Dr Michael Weiss about his research in neurological disease and the place of ALS among these disorders.https://www.blogtalkradio.com/alscrowd/2014/07/11/als-crowd-radio-dr-john-ravitsHealthhttps://www.blogtalkradio.com/alscrowd/2014/07/11/als-crowd-radio-dr-john-ravits/#commentshttp://www.blogtalkradio.com/alscrowd/2014/07/11/als-crowd-radio-dr-john-ravitsFri, 11 Jul 2014 21:00:00 GMTALS Crowd Radio: Dr John RavitsJoin us Friday, July 11, 2014 for an interview with Dr John Ravits about his research in the biology of ALS. 01:05:00ALS Crowd RadionoALS,Amyotrophic lateral sclerosis,motor nueron disease,MMD,ALScrowdJoin us Friday, July 11, 2014 for an interview with Dr John Ravits about his research in the biology of ALS.https://www.blogtalkradio.com/alscrowd/2014/06/26/als-crowd-radio-dr-merit-cudkowicz-md-mscHealthhttps://www.blogtalkradio.com/alscrowd/2014/06/26/als-crowd-radio-dr-merit-cudkowicz-md-msc/#commentshttp://www.blogtalkradio.com/alscrowd/2014/06/26/als-crowd-radio-dr-merit-cudkowicz-md-mscThu, 26 Jun 2014 21:00:00 GMTALS Crowd Radio: Dr. Merit Cudkowicz, MD, MScWhat is the latest in ALS therapy and innovation? ALS expert Dr. Merit Cudkowicz, MD, MSc of Massachusetts General Hospital will join us for our very first ALS Crowd show to give patients an update on the very latest research and findings for ALS patients. This new series is created to connect ALS patients with the ALS research community, to educate and empower them to make educated choices about their care. Listen in to this important and inagural show. 01:00:00ALS Crowd RadionoALS,amyotrophic lateral sclerosis,motor neuron disease,MND,Merit CudkowiczWhat is the latest in ALS therapy and innovation? ALS expert Dr. Merit Cudkowicz, MD, MSc of Massachusetts General Hospital will join us for our very first ALS